Dear all, I´m searching for studies that deal with mediators of coping with MS and outcomes such as adherence to DMT, subjective well-being and quality of life, etc., ... I´m especially interested in health psychology approaches. Thank you very much in advance!
Dear Jennifer,
here are some papers on the issue:
Article Coping with Multiple Sclerosis: Development of a Measure
Article Coping with multiple sclerosis as a couple: “Peaks and troug...
Article Coping with Multiple Sclerosis: coping strategies, personali...
Article Intolerance of Uncertainty: Shaping an Agenda for Research o...
Article Coping with Multiple Sclerosis Scale (CMSS): Reconsideration...
Dear Jennifer,
It seems that self-efficacy as well as tolerance of uncertainty can serve as mediators in this case
Dear Jennifer,
A listing of articles in pubmed brought up by ""multiple sclerosis" AND (mitochondrial OR mitochondrion)" yielded 586 articles, With such a wide recognition of the loss of mitochondrial function in MS and knowing the brain is such a consumer of mitochondrial resources, that may mean that recognition of these issues might go far in helping patients feel better about life, giving them a sense that they can also be active in helping themselves feel better.
I've just returned from a conference sponsored by the UMDF (United Mitochondrial Disease Foundation) and this conference involved training for the medical profession in how to recognize mitochondrial disease. They mentioned that for those with different types of mitochondrial disease (and dysfunction) most mito doctors will use what they call a "mito coctail" which is a list of nutrient supplements that may boost mitochondrial function in people who have limitations in that area. Among doctors treating mito dysfunction, there is not total agreement as to how many nutrients to include but there is generally an agreement on which are the most effective. None of the items on their list requires a prescription since they are all readily available over the counter.
I was glad I attended their meeting. If anyone reading is interested in seeing the chart they showed us on how best to recognize mitochondrial issues in patients, please feel free to send me a private message.
I study mitochondrial issues in autism, but there are areas of overlap.
Susan
Dear Jennifer,
These resources may interest you:
- Stress and multiple sclerosis: A systematic review considering potential moderating and mediating factors and methods of assessing stress by Laia Briones-Buixassa, Raimon Milà, Josep Mª Aragonès, Enric Bufill, Beatriz Olaya, & Francesc Xavier Arrufat.
- Change in the Health-Related Quality of Life of Multiple Sclerosis Patients over 5 Years by Wonita Janzen, Karen V. L. Turpin, Sharon A. Warren, Ruth Ann Marrie, & Kenneth G. Warren.
- The mediating effect of coping on the association between fatigue and quality of life in patients with multiple sclerosis by Pavol Mikula, Iveta Nagyova, Martina Krokavcova, Marianna Vitkova, Jaroslav Rosenberger, Jarmila Szilasiova, Zuzana Gdovinova, Johan W. Groothoff & Jitse P. van Dijk.
http://hpo.sagepub.com/content/2/2/2055102915612271.full
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883029/
http://www.coherent.sk/docs/mikula_rosenberger2015psychhealthmedicine.pdf
We are working on a study with the hypothesis that stress is correlated with MS, but not directly, there are factors like copying style and alexithymia that are moderators of biological response. Preliminar results show high correlation with this two factors.
Hi Jennifer, as my colleague commented above we are working on psychosocial factors and MS within a Health Psychology framework. If you are interested in more information please feel free to contact me via email: [email protected].
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