One paper that might get you started can be found at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2821736/
Family Functioning in the Context of Pediatric Chronic Conditions
Michele Herzer, Ph.D.,1 Neha Godiwala, B.S.,2 Kevin A. Hommel, Ph.D.,1 Kimberly Driscoll, Ph.D.,3 Monica Mitchell, Ph.D.,1 Lori E. Crosby, Psy.D.,1 Carrie Piazza-Waggoner, Ph.D.,1 Meg H. Zeller, Ph.D.,1 and Avani C. Modi, Ph.D.1
J Dev Behav Pediatr. 2010 Jan; 31(1): 26. doi: 10.1097/DBP.0b013e3181c7226b