I am interested to know if the type of carbohydrate assists with recovery and minimizing symptoms during an attack. How much increase in carbohydrates should be recommended to a person during an attack?
Hello Karen
Carbohydrate - glucose - is mentioned in quite a few papers, but little detail is given, so I have not included them. However, this paper, available on ResearchGate, has a section on p.3 that is relevant:
Stein, P., Badminton, M., Barth, J., Rees, D., & Stewart, M. F. (2013). Best practice guidelines on clinical management of acute attacks of porphyria and their complications. Annals of Clinical Biochemistry, 50(3), 217-223.
https://www.researchgate.net/profile/Julian_Barth2/publication/236253705_Best_practice_guidelines_on_clinical_management_of_acute_attacks_of_porphyria_and_their_complications/links/0deec52715e1f8b3d5000000.pdf
There were some non-academic websites that may be of interest.
The American Porphyria Foundation:
http://www.porphyriafoundation.com/about-porphyria/diet-and-nutrition
The European Porphyria Network:
http://www.porphyria-europe.org/02-for-healthcare/treatment.asp
Very best wishes with this
Mary
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