I am starting to work in the area of psychological counseling of children and young adults with CHD. I would be very grateful to get information on seminal psychological work in this area.
Psychological and Cognitive Functioning in Children and Adolescents with Congenital Heart Disease: A Meta-Analysis
Petra A. Karsdorp, MA Walter Everaerd, PhD Merel Kindt, PhD Barbara J.M. Mulder, MD, PhD Journal of Pediatric Psychology, Volume 32, Issue 5, 1 June 2007, Pages 527–541, https://doi.org/10.1093/jpepsy/jsl047
Hello,
Have you seen these?:
Areias, M. E. G., Pinto, C. I., Vieira, P. F., Teixeira, F., Coelho, R., Freitas, I., ... & Quintas, J. (2013). Long term psychosocial outcomes of congenital heart disease (CHD) in adolescents and young adults. Translational pediatrics, 2(3), 90.
https://www.researchgate.net/profile/Maria_Areias3/publication/316241444
(although this might be similar to a paper suggested following your previous question - same team of researchers, different journal)
Apers, S., Kovacs, A. H., Luyckx, K., Alday, L., Berghammer, M., Budts, W., ... & Dellborg, M. (2015). Assessment of patterns of patient-reported outcomes in adults with congenital heart disease—international study (APPROACH-IS): rationale, design, and methods. International journal of cardiology, 179, 334-342.
https://www.researchgate.net/profile/Shelby_Kutty/publication/268512716
Jackson, J. L., Misiti, B., Bridge, J. A., Daniels, C. J., & Vannatta, K. (2015). Emotional Functioning of Adolescents and Adults with Congenital Heart Disease: A Meta‐Analysis. Congenital heart disease, 10(1), 2-12.
Article Emotional Functioning of Adolescents and Adults with Congeni...
This is the link to the full text:
https://scholar.google.co.uk/scholar?hl=en&as_sdt=0%2C5&as_ylo=2014&q=+Emotional+Functioning+of+Adolescents+and+Adults+with+Congenital+Heart+Disease%3A+A+Meta%E2%80%90Analysis.+&btnG=
Very best wishes,
Mary
Paper to be issued
in J Cardiac Pediatric Heart Surgery , By Jen Re Samuel Menahem &al
Relationship of Infant Social Withdrawal (ADBB)
And Maternal Distress Following Infant Cardiac Surgery for
Congenital Heart Disease.
see: [email protected]
Alfred Hager and Jan Mueller, at the Deutsches Herzzentrum, do a lot of work with quality of life in CHD patients of all ages. Not sure if QoL is precisely the outcome you're looking for but I think they do have data on other psychological conditions like depression; and they're always glad to share papers. They're not on RG but here's Dr. Hager's homepage:
http://www.dhm.mhn.de/de/kliniken_und_institute/klink_fuer_kinderkardiologie_u/klinikteam/prof_dr_med_alfred_hager.cfm
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