Nimodipine 30 mg twice a day due to neuroprotective properties up to 24 mo,

Vit A and Vit E

To prevent further damage also sun glasses use to prevent harmful effect of light 

Thanks a lot Marianne for your answer.

Sodium Valproate does have positive effect on visual function in RP. Research is still going on. You can refer below article.

J Ocul Pharmacol Ther. 2014 Sep;30(7):580-6

Efficacy of oral valproic acid in patients with retinitis pigmentosa. (Kumar A, Midha N, Gogia V, Gupta S, Sehra S, Chohan A.)

Laser. I know it sounds crazy, but SDM laser improves electrophysiology, visual fields, night vision, and CME. I will be reporting ~ 40 eyes at the ASRS in San Francisco. Preliminary results published in IOVS Jan 2016. No adverse treatment effects. 

he can use low vision aids, no sullements.

 Kashinatha, What are the low vision aids you mean?Like what? amd thanks a lot.

Common low vision aids are magnifiers, electronic devices with high visibility and speaking functions (think alarm clocks, telephones, watches, kitchen appliances), large print books, eReaders with scalable text, voice recognition software for computer use.

Hi Amy. The patient is suffering from progressive loss of vision. He has only response to hand shaking or light  He can see by any means and no benefit of eye glasses 

Acknoledged. Some of the low vision devices that would be useful to him are electronic devices made with audible speaking functions. Clocks, watches, telephones, kitchen appliances, scales. He might not be able to read the digital displays on them, but they will speak out loud the information.

Dear Mr.Isho,

May be this app for smartphones and tablets will be useful for the patient.

Bes regards,

Marianne

Good mornin prof. Marianne Levon Shahsuvaryan ,

my name is Giuseppe Masciopinto,

I send you the video presentation of my free app for smartphones and tablets for blind users for the recognition and the distance of walls, exit doors and obstacles.

Regards,

dott. Giuseppe Masciopinto

AROR.mp4

There is a possibility that the arterial constriction caused by the Caffeine can cause or get worse this retinitis. I suggest to my patients to avoid taking Caffeine, but I had few of them to take any conclusion.

Thanks a lot Victor for your answer. 

Genetic testing might help to identify the phenotype of RP. Some are early onset, some are periphereal vs central vision loss, some are x linked with females being carriers only, etc. most all start with night blindness. Stem cell is the latest research taking place. Check out the RP Foundation (new name recently, not sure what).

Crisper for gene splicing, vitamin A, stem cell transplants into the retinal area to reproduce rods and cones, check out utube video from the RP foundation (has a new name Fighting Blindness) brand new video with updates on treatment options. **I was misdiagnosed with NAON for 10 years by several neuro ophthalmologists at the same office. I went to a retina specialist and I have advanced RP not NAON. I told all of them I had a 50% genetic risk of getting it but was assured every visit I didn't have any signs of RP and visual fields remained intact..** No one will take my case to sue because the outcome is the same, it is called "a mistake". My life certainly has changed since new dx 2 months ago.

Kelly,

So, the question is about new available treatments. The gene therapy, etc, are what-ifs in the future. What have they done for you so far to make a difference?

Jeffrey,

They are doing these studies now with humans and having good success. Check out the Foundation for Fighting Blindness videos on utube. Once I get my genetic tests back in a few weeks, I hope to enroll in some studies. I'm taking supplements, as some work with NAC has shown some good results and vitamin A. I take glutathione liposomal, phosphatidyl choline, Liposomal C, Lion's Mane which I have for years for brain support NOT RP but perhaps my consistent visual fields and improvement in night vision are because of that. No one knows yet.

What is your interest in this subject?

Luttrull JK. Improved retinal and visual function following subthreshold diode micropulse laser (SDM) for retinitis pigmentosa. Eye (London) Feb 2018 PAP open access https://doi.org/10.1038/s41433-018-0017-3

WOW, where can I get that done? Very nice paper and study!!

Where do you live?

Laser to slow progression of RP sounds hard to believe. Innovation is always absurd. You might want to have a look at our study on slowing progression of AMD on researchgate: Preprint Prevention of neovascular AMD: Real world efficacy of progra...

If laser can slow AMD with a HR of >13, could it slow RP a bit as well?

In response to public interest after publication of the RP paper, FFB asked us to submit a proposal for a trial. In response to the invitation, we began to design a multicenter RCT of laser for RP. A few weeks later, we got a email that the FFB BOD had reviewed our trial proposal and found it deeply flawed, sighting a number of very specific (and striking!) deficiencies. The problem? We had not finished designing our trial, and had thus not submitted it to them yet.

FFB is a charitably funded VC whose stated goal (FFB CEO, OIS, 2019) is to use the orphan drug approach using RP as a vehicle to find treatment for their real interest, the tremendously larger and more valuable market of AMD. Thus, any other effective treatment would reduce the value of their portfolio. It is the way of the world. It is the way of medicine.

Dear patient:

The most important is not what treatment you will do.

The most important for your eyes is what you must not eat or drink no more, which are poisonous and worse them: Caffeine, Beer and Wine.

More details in the E-book "Fluids Hipertension Syndromes!", free at www.izecksohn.com/Leonardo .

liposomas glutathione and vitamin c liposomal are new to my regime, been taking phosphatidylserine, pycnogenol, D3, CoQ10 for years. My night vision came back with the first 2 supplements mentioned.

Michigan.

I think the closest person who might be able to do SDM for you is in Chicago. Happy to contact him if you're interested, and happy to discuss w you anytime. [email protected]

PBM, supplements, lumiThera (type of light therapy but most do the same thing such as sunsolarled.com ), if gene identified there is a treatment for X linked (can't remember the name), Accupuncture.