What are the ethical implications of depositing genetic data in public research databases?

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What are the legal implications of depositing genetic data in public research databases?

Can anyone give examples of what the law says about this in various countries?

08 September 2016 6,599 2 View

Do we see in genetic data depositing a clash between utilitarian and deontological principles?

The use of deposited genetic data for the common good apparently maximizes the good (the greatest good for the greatest number) while issues of informed (re)consent, confidentiality, privacy etc....

08 September 2016 566 2 View

Is morality merely a social construct?

In that case: morality = convention.

08 September 2016 9,852 0 View

Do we have a moral right to select our offspring on the basis of what new bio-technologies have on offer or will have on offer?

Eye color? Height? IQ???

08 September 2016 5,625 0 View

If morality is merely convention, do we have a moral right to do anything we wish as long as we can get away with it?

"Getting away with it": being spared any detrimental legal, social, psychological etc. consequences.

08 September 2016 4,556 25 View

Are genetic data commons?

If so, which institutions have a moral right to request them from citizens?

08 September 2016 4,767 2 View

Are there any circumstances under which an employer has a moral right to request genetic data from her employees?

The case of the "devious defecators" ended in a landmark ruling in the U.S. (Georgia) that might imply that genetic data are private goods and not commons. Is that the case?

08 September 2016 7,237 2 View

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What degree of missing data in a particular case/participant results in Expectation-Maximisation no longer working?

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How to address this issue in the analysis of Real-Time PCR results?

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How to arrange coordinates and extract climate dataset out of MPI-ESM-MR netcdf files?

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Dragos Simandan

For a survey of the ethical and legal implications, see:

Cambon-Thomsen, A., Rial-Sebbag, E. and Knoppers, B.M., 2007. Trends in ethical and legal frameworks for the use of human biobanks. European Respiratory Journal, 30(2), pp.373-382.

Article Trends in Ethical and Legal Frameworks for the use of Human Biobanks

Vojin Rakic

Thank you, Dragos