Do we see in genetic data depositing a clash between utilitarian and deontological principles?

More Vojin Rakic's questions See All

What are the legal implications of depositing genetic data in public research databases?

Can anyone give examples of what the law says about this in various countries?

08 September 2016 6,599 2 View

Is morality merely a social construct?

In that case: morality = convention.

08 September 2016 9,852 0 View

Do we have a moral right to select our offspring on the basis of what new bio-technologies have on offer or will have on offer?

Eye color? Height? IQ???

08 September 2016 5,625 0 View

If morality is merely convention, do we have a moral right to do anything we wish as long as we can get away with it?

"Getting away with it": being spared any detrimental legal, social, psychological etc. consequences.

08 September 2016 4,556 25 View

What are the ethical implications of depositing genetic data in public research databases?

Is it morally justified if research funders and publishers require from researchers to give the relevant scientific community access to their deposited genetic data?

08 September 2016 4,339 2 View

Are genetic data commons?

If so, which institutions have a moral right to request them from citizens?

08 September 2016 4,767 2 View

Are there any circumstances under which an employer has a moral right to request genetic data from her employees?

The case of the "devious defecators" ended in a landmark ruling in the U.S. (Georgia) that might imply that genetic data are private goods and not commons. Is that the case?

08 September 2016 7,237 2 View

How we can measure Kemp % in wool without using of benzene?

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21 February 2021 7,260 4 View

Statistical methods for comparing gene expression curves?

Hi all, I have generated two gene expression curves by measuring bioluminescence every 10 mins for 12 hrs. These curves tend to overlap at at some time points, while a difference can be seen at...

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Help needed: How to map AA, AG, and GG genotypes on to polymorphism information?

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Measurement items privacy and security personal health information?

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14 January 2021 375 3 View

New knockout bacterial strain: Can't electroporate it?

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Can you advise reference publications/standards on characterizing plant genetics research and development activities, and the outputs it generates?

I am doing semantic analysis of science and grey literature publications in the field of plant genetics and breeding. I have a standard dictionary but I am not sure if it captures the state of art...

31 December 2020 5,871 4 View

What is the role of fresh cow dung in sprouting in stem cutting propagation?

In my personal experience I have find the higher rate of sprouting when fresh cow dung is applied on the top side of cutting what might be its reason.

24 December 2020 4,068 6 View

What is the level of consciousness , communication and feeling in plants ?

Do you think the plant can communicate with each other, what is the level of feeling in plants?

22 December 2020 2,754 17 View

How to cut dsDNA chain with Uracil-DNA Glycosylase at the point of dU in room temperature?

18 December 2020 6,908 3 View

Why pink coloured or light red onion have more storage life than white and dark red one and smaller size one to has more than bigger one?

It is generally seen light coloured varieties has more storage life.what's relation with colour and size with storage life.

13 December 2020 634 18 View

Tomas Koltai

I see no conflict because the identity of persons whose data are deposited are not publicly disclosed, so that confidentiality is not breeched.

Vojin Rakic

Thank you. Guaranteeing confidentiality is however not enough. Informed consent is also essential. The principle of informed consent is widely recognized as an essential value of bioethics in general. Informed consent allows individuals to exercise their fundamental right to decide whether and how their genetic data and bio-specimens will be used in research. Informed consent, however, faces difficulties in the case of large-scale biobanks, which require longitudinal and extensive exchange of genetic data. A sample is taken at a precise moment and after that it is utilized over time with research questions evolving during the entire process. This opens up the issue of secondary use of genetic data, consent withdrawal and informed re-consent. The common good and individual rights might be in a tense relationship here.