I have read through the forms and documentation for the Multicenter AIDS Cohort Study several times, and I am not seeing any health data about life partners having been captured. Regarding "blood relatives," there is some. I would assume that this is a result of "no promo homo."
This hasn't been a bad dream, has it?
David, I see no one has responded. I only used MACS once in conjunction with WIHS, the women's HIV study. My recollection is MACS did not capture that information, but I would not presume to guess why. I know there is literature more specific to MACS. Perhaps you could contact one of those authors directly to see if they would entertain the idea of capturing the information you want. From my brief foray into MACS data, I know it certainly hasn't been static through the years, and perhaps they might be able to capture the information you want going forward.
I observed several inhabitants living along lake victoria shores who I accidentally know to be HIV positive but they do not know that they are HIV positive and I have advised them to eat plenty of fish and vegetables,and immediately seek medical treatment for any infection. They are healthy and I shall soon invite them for couselling??
I spent about 10 years with the MACS study, roughly 1988-98. The MACS started in 1983, I think. You need to ask John Phair, MD (PI from Northwestern Medical School) or David Ostrow, MD about the full data set. Both are on RG. (I believe David was the author of the original proposal for a multi-center study of the unknown disease killing gay men in the early 1980's.)
As far as I know, "no promo homo" had no part in the study although there were controversial aspects. The Chicago cohort study site was in "Boys Town" on the north side of Chicago, in Howard Brown Health Center, a community-based LGBT health care center. HBHC had identified some of the index cases of AIDS in Chicago. Most of the cohort management team were from the community. I do not remember if we collected specific SO data although there were many long-term couples in the cohort and we knew who they were. It certainly seems like a good idea in retrospect. The original plan was directed at infectious disease / epidemiology targets, including identification of the disease agent(s), transmission vectors, sexual behavior & virology and only later added psycho-social variables like depression. Eventually MACS developed into a longitudinal study of HIV / AIDS course and treatment.
It is not a bad dream. Hindsight offers some lessons.
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