I am looking for a validated QOL tool to assess how much burden (i.e. time, costs, restriction of activities, difficultly, stress, pain) a patient's medical care/management (NOT their medical condition) causes them and/or their family. This is mostly for adult home-based rather than hospital based patients and the medical care would predominantly be self administered or administered by a carer/relative.

I have looked at standard QOL tools such as EQ5D, but most of these tools focus of the impact of the medical condition itself or the overall health of the patient. I want to be able to assess if interventions designed to make patient's home medical care less burdensome are effective or not.

Thanks in advance!