We would like to start using a program to build pedigrees for our genetic CJD and dementia cohorts. The program should allow to incorporate and search for clinical data.
Progeny is a good one that can integrate clinical and lab databases. Although it get stuck easily and mix up the drawing with multiple lope of consanguinity where the company could not fix it for me.
FamGenix is a family health history platform that allows you to build pedigrees yourself or auto-generate them by gathering family history data from patients/family members via the app/web portal. It also includes custom surveys that can be sent to participants. On the provider portal you can enter/search clinical data and review/edit pedigrees. https://famgenix.com