Genetic disorders is a serious health problem in India. We have to prevent these genetic disorders. if we want to reduce the number of morbidity and mortality due to genetic disorders. For this genetic counseling is a one intervention which is done before marriage or during antenatal if there is already case of genetic disorders.
Hello Greetings.
Dear sir, at this time we have not sufficient resource and condition for genetic counselling. and our system also not interested to take any steps about this. For genetic counselling we want expert person who know the knowledge of genetics about hereditary and disease phenotype but in our india we are only interested to know us geneticist, remaining thing is not important for us, in this situation how could we improve the genetic counselling? In another hand, patient is also reluctant about it because of that they don't know the importants of it.
One important thing, in our India govt. was took one steps towards genetic counselling of sickle cell anemia. They tried to convinced patients of "AS & SS" type for how to chose partner. but present situation is don't know. So, sir it will better if we can do something about it.
Genetic counselor need genetic and molecular biology and psychology training, physicians need to cooperate with them. But most of time, many physicians don't respect them. Indeed, many physicians didn't have enough human genetics training, also in Taiwan. They will lose sensitivity to note that is the genetic problem. That is still a long road, either in India or in Taiwan. Because those people have the genetic problem are small group.
Dear Monal Lal,
please, connect with Dr. Shreekala Kandapalanivel in Chennai ([email protected]), who is the founder and director of "ANAMAYA" - Indo Pacific Cleft Prevention Program. The goal of this program is exactly what you are seeking for. I am also involved and strongly supporting this program and sharing my experience from prevention of cleft lip and palate anomalies. Please, find some of my articles in Research Gate or contact me and I will be happy to email them to you. To establish effective cleft prevention program needs a team, not only the genetic counselor, who is, however, very important part of the team. The first level of any prevention is education on all level - health professionals and provider, patients and their families, and general public.
Yes, we cannot wait much longer, we need to invest in cleft prevention now! Our knowledge, time, and funding!
Marie M. Tolarová, M.D., Ph.D., D.Sc.
Professor and Executive Director, Pacific Craniofacial Team and Cleft Prevention Program
Trustee, International Cleft Lip and Palate Foundation
Director, Rotaplast Intl., Inc.
University of the Pacific, Arthur A. Dugoni School of Dentistry
115 Fifth Street, San Francisco, CA 94103
Email: [email protected]
www.dental.pacific.edu
www.cleftprevention.org
Dear Dr. Mohan Lal,
sorry for misspelling your name. I have a history with your Medical College - visited Amritsar several times long time ago when helping to Dr. Jai Rup Sing - at that time young doctor interested in medical genetics to establish this specialty there. Dr. Jai Rup Sing also visited my department - at that time in Prague, Czech Republic.
Dr. Tolarova ([email protected])
Dear Dr Lal. I have attached a report on Genetic Testing in Emerging Economies which includes information on China, India, East Asia, the Middle East and South Africa, and their developing policies on incorporating genetics and genomics into public health care.
Gillian Dusterwald ([email protected]) Genetic counselling student South Africa
- Badges
- Science topic
- Similar topics
- Medicine
- Counseling Psychology