I am interested to know the caregivers needs to provide high quality care for patients with cancer. I am not looking for the psychological needs, but the knowledge and skills that we should equip the caregivers with, and the most common demands for the patients with cancer.
If you are aware about any instrument to measure these needs, this also will be highly appreciated.
Hello Prof. Ahmad
I have not accessed the full text to this paper, but it looks worth looking at:
Tanco, K., Park, J. C., Cerana, A., Sisson, A., Sobti, N., & Bruera, E. (2016). A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliative & supportive care, 1-15.
https://www.researchgate.net/publication/299492118_A_systematic_review_of_instruments_assessing_dimensions_of_distress_among_caregivers_of_adult_and_pediatric_cancer_patients
This is an older, but interesting review:
Richardson, A., Medina, J., Brown, V., & Sitzia, J. (2007). Patients’ needs assessment in cancer care: a review of assessment tools. Supportive Care in Cancer, 15(10), 1125-1144.
https://www.researchgate.net/publication/6566554
I was particularly drawn into Table 5, the following discussion and the conclusion.
It will be good to read what other RG members suggest.
Very best wishes,
Mary
Article Patients' needs assessment in cancer care: A review of asses...
Article A systematic review of instruments assessing dimensions of d...
Here's an article on tasks the caregivers need to manage with a person with head and neck cancer.
Bond, et al. (2016). Development of the Head and Neck Cancer Caregiving Task Inventory. Eur J Oncol Nurs.24,29-38.
Caregivers who care for individuals who have colostomies or ileostomies because of cancer also need a lot of instruction. The Mayo Clinic website often has patient information which guides caregivers. I've attached the one about colostomies. In this case the caregiver might need to change what foods to cook.
Good luck in your search.
http://www.mayoclinic.org/diseases-conditions/colon-cancer/in-depth/ostomy/art-20045825
understanding about the condition of the patient(to whom they providing care),Counselling to the caregiver to come out from the shock,and brief information about how they provide care to them, frequent information about the outcome of patient with treatment and their care, Relaxation for them, some one need to relive them in between , financial and other family support, etc.
Interesting subject Dr. Muayyad. Are you looking for the family or professional caregivers or both of them?
Dear Abdulqader,, thank you for your interest. Actually we are looking for family and relative caregivers, but not professionals. As you know, professionaonals are prepared academically and have experience in this care. The family members are incuring heavy burden in this sudden role in their life, so we need to work on this part to enable them to provide better care and to enhance their psychological adaptation
thank you Dr. Muayyad for the thoughtful explanation .. please find the following links
http://onlinelibrary.wiley.com/doi/10.1002/cncr.29939/full
http://link.springer.com/article/10.1007/s11136-016-1239-0
yes instrument to measure needs of the care giver for other condition like elderly,stroke,Alzheimer ,dementia available ,it can be modified or tit gives an idea to prepare checklist
hello all
i think this site very very informative and answer your Q
THANKS
http://www.cancer.net/
What does “giving care” mean?
Giving care can mean helping with daily needs. These include going to doctor visits,
making meals, and picking up medicines. It can also mean helping your loved
one cope with feelings. Like when he or she feels sad or angry. Sometimes having
someone to talk to is what your loved one needs most.
While giving care, it’s normal to put your own needs and feelings aside. But putting
your needs aside for a long time is not good for your health. You need to take care
of yourself, too. If you don’t, you may not be able to care for others. This is why
you need to take good care of you
https://www.cancer.gov/publications/patient-education/caring-for-the-caregiver.pdf
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