I want to link it with the premature babies study I was a part of at liverpool university for 16 years when they get finally get the results back to me, and body/scan checks every 10 years since. Another contribution to the science's while I can is my thinking on this.
I wanted a second opinion for any abnormalities and also to share the imagining if anyone wanted the data.
John,
If the MR and CT images are of your own brain, and acquired and released to you by the principal investigator as part of a research study, then technically its your data and you can do with it what you wish.
The majority of people are very protective of who can see their medical data. Your offering of images is to be commended, however I (personally) would be very wary of any medical opinions expressed online regarding "second opinions". Secondary reviews should really follow proper channels where your clinical history can be a significant factor to a clinical report.
I agree totally with ethical release of my own data, and considering opinions in this forum with due care. It took almost 4 years to get these scans which was a referral to a private company who offer no second opinions.
Indeed, yourself aswell. Mainly it is a consistent cranial pressure growing in intensity (4 years) not related to stress or other external factors that I've been aware of. Also involved are sight disturbances and tremors in the hands and legs from time to time. I kept being told I had anxiety instead of a scan and offered medication till last September.Which were reported cerebral and cerebellar hemispheres and brain stem show normal appearances. There is a mucous retention cyst in the base of the left maxillary antrum.. How about yourself?
Dmitry thank you for sharing these correspondance. You make an interesting point about the level of resources and responding to people as individuals not a group study mechanic. What has the response been to these requests?
It's interesting you mention the two MRI with inconclusive results, I agree that while imagining is improving, interpretation and analysis is also still improving. Is the alternative medicine still helping your symptoms?
Fluid retention around the brain seems to becoming more common from my discussions along these lines. Are you still taking Aggrenox to reduce swelling?
Dear Dmitry Gorodetsky,
I have looked through your MRI scans of 2017 and highlight again that I am no neuroimaging specialist merely offering a perspective from my own scans. I could see unusual points on TRA 2/24 in the parietal lobe specifically Supramarginal gyrus (parietal lobe).
And on the localizer - scans 2/3 superior front sulcus and left occipital lobe - I crossed this with the FLAIR scan but could find no correspondance.
This website suggests enhanced scans of different areas and perspectives on new techniques?
http://www.radiologyassistant.nl/en/p43dbf6d16f98d/dementia-role-of-mri.html - Breakdown of what to look for (2012)
https://www.medgadget.com/radiology - Technology news
I hope this helps a little, how are your alternative therapies working out?
2/24 - Scan 24 of the 2nd series I Believe.
Localizer scans. A set of three-plane, low-resolution, large field-of view localizers are first obtained, equivalent to "scout views" in CT. These localizer images will be used for plotting slices in step 6.
You may find this study from Oct 2017 interesting which I've been convinced of, https://www.nih.gov/news-events/nih-research-matters/brain-cleaning-system-uses-lymphatic-vessels -
"They also found evidence for blood and lymph vessels in the dura of autopsied human brain tissue. Moreover, their brain scans and autopsy studies of brains from nonhuman primates confirmed the results seen in humans, suggesting the lymphatic system is a common feature of mammalian brains.
“These results could fundamentally change the way we think about how the brain and immune system inter-relate,” said Walter J. Koroshetz, M.D., NINDS director.
Dr. Reich’s team plans to investigate whether the lymphatic system works differently in patients who have multiple sclerosis or other neuroinflammatory disorders.
“For years we knew how fluid entered the brain. Now we may finally see that, like other organs in the body, brain fluid can drain out through the lymphatic system,” said Dr. Reich.
This study was supported by the Intramural Research Programs at the NINDS and the National Cancer Institute, the National Multiple Sclerosis Society, and the Conrad N. Hilton Foundation.
NINDS is the nation’s leading funder of research on the brain and nervous system. The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease." ( Ha et al. Human and nonhuman primate meninges harbor lymphatic vessels that can be visualized noninvasively by MRI, October 3, 2017, eLife: 10.7554/eLife.29738 )
Article A systematic approach to diagnosis of cystic brain lesions
- Fascinating discussion on the limits and approaches of differing imagining and interpretation. Always ask the patient :)Spot the abnormalities - Was performing a number of cognitive tasks for the 45 mins duration - Calibration and re-sequencing, not easy to concentrate during that noise and confinement.
Immediate genetic genealogy in the family (1st gen) - Parkinson's Disease, Dementia to Alzheimer, Cancer, Premature death at birth,
Bi-ventricular tachycardia.
Book Turn & Burn Combo Ebook - Fitness for life & Cancer Preventi...
- My personal health strategy for carers and cared for people.
Book Brain Tumor Guide for the Newly Diagnosed, Tenth edition The...
- Shared with permissionhttps://www.academia.edu/36951436/Brain_Tumor_Guide_for_the_Newly_Diagnosed_An_up-to-date_and_essential_guide_to_Tenth_edition
The latest label from today's meeting with neurology
https://www.nationalmssociety.org/Research/Research-News-Progress
https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures/All-Brochures
https://www.nationalmssociety.org/Treating-MS
Today's chat with https://www.nationalmssociety.org
' I wanted to ask as a health Psychologist in the UK interested in Researching MS after being diagnosed 5 years into the disease and living with it, can I partner with the society?' I've found that the majority of research is USA/Canada so would be interested in pursuing research there and learning what I can to manage the disease'
Okay, sure! How are you hoping to partner with us? And I can help with connecting you to our information that will help you to learn more about managing MS.04:51:09 pm'
john04:51:56 pm I have been a independent researcher with an IRO group as a health psychologist and writing informing on mental health, wellbeing and isolation. It would be interesting to relate when I have found personally and my research on carers dealing with the disease management over the 5 years
Carla04:54:28 pm I know we have an email address for our Professional Resource Center - it's an email for health professionals to use to connect with the PRC on topics such as research studies. If you might want to use it, that email is [email protected]. We have other information for professionals on our website, too, looking to see if I can find that in case it's helpful. There is an e-newsletter for professionals and other things.04:55:10 pmhttps://www.nationalmssociety.org/For-Professionals/Professional-Resource-Center
john04:55:21 pm Thank you, I will email now and also research your website afte rjust seeing a neurologist in the UK. Also I've shared my research and writings for free on open access forums if useful?
Carla04:55:41 pm That's great!
john04:57:27 pm Please take a look https://www.researchgate.net/profile/John_Horsfield - The Brain scans and personal ebooks on living with the disease are in this thread. I will wait to hear back on email? - https://www.researchgate.net/post/Should_I_upload_my_latest_CT_and_MRI_Brain_scan_videos_for_others_to_discuss?_ec=topicPostOverviewAuthoredQuestions
Carla04:58:09 pm I will, thank you for sharing
john04:58:40 pm Also is there a guide I could upload to research-gate to inform and raise awareness?
Carla04:59:06 pm A guide with information about MS and what it is? john04:59:47 pm Indeed and the latest executive review of research? Which I may have downloaded as Practice guideline: Disease-modifying therapies for adults with multiple sclerosis
Carla05:00:18 pm We have several publications here on various topics: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures/All-Brochures I am not as familiar with guides from organizations outside of the Society, such as the AAN, but the Professional Resource Center that you will be emailing is, for sure.
john05:01:10 pm Thank you, I will upload this link and the latest research page on your website for the thread if thats ok?
Carla05:01:40 pm You're welcome!
john05:02:07 pm I hope to hear back from the team regarding using my existing 5 years of research and perhaps partnering for more while I can
Carla05:02:21 pm Thank you for reaching out to us!
Second opinion from Private Neurology - CFT - Lamotrigine 25mg to 50mg after two weeks (1/pd) with Nimodipine 25mg to 50mg after two weeks (1/pd). CBT with graded exercise suggested. No focal Neurology found.
Lamotrigine prescribed for 1 month (25mg/pd for 2 weeks then 50mg/pd for 2 weeks), self refer for CBT - Supporting Minds.
Nimodipine dropped per GP. Refusal for 2nd MRI referral to check for neurological comparison 1 year later.
Will be uploading my bloods results over 3 date's. March 2019, March 2017 and April 2016 . In addition I've been doing exercise/diet regime's for the past 6 years since on-set of symptoms to keep track of my progression and functionality in day to day cognitive tasks.
Fitquest Gym stats month 4 combo - #newhighscore 150
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