Hi Abdulqadir,

attaching few i have in my collection. hope this would be of help.

regards

Many thanks Rathish .. very helpful

Please see the attached articles 

.

http://www.ncbi.nlm.nih.gov/pubmed/25935178

http://www.ncbi.nlm.nih.gov/pubmed/25232402

http://www.ncbi.nlm.nih.gov/pubmed/25181014

http://www.ncbi.nlm.nih.gov/pubmed/25129193

http://www.ncbi.nlm.nih.gov/pubmed/25002926

http://www.ncbi.nlm.nih.gov/pubmed/24575281

http://www.ncbi.nlm.nih.gov/pubmed/24343469

http://www.ncbi.nlm.nih.gov/pubmed/23903265

http://www.ncbi.nlm.nih.gov/pubmed/23316378

http://www.ncbi.nlm.nih.gov/pubmed/23170187

More articles 

http://www.ncbi.nlm.nih.gov/pubmed/23019522

http://www.ncbi.nlm.nih.gov/pubmed/22712884

http://www.ncbi.nlm.nih.gov/pubmed/23450080

http://www.ncbi.nlm.nih.gov/pubmed/21772908

http://www.ncbi.nlm.nih.gov/pubmed/18953145

Many thanks Ahmad .. appreciated 

Quite interesting question and interesting answers as well. However, the contribution from my part would be critical questions. As we know most of the thalassemic patients are infant or children; would a questionnaire anwer their mind? How would you judge QoL in a baby who cant speak or read your questionnaire? How about a severely end stage patient?

Food for thought :) 

thanks 

Best,Kumar

thank you Ashok for your contribution .. from my readings there're two types of surveys (PedQoL) self-reported by the child or adolescence and another version to be filled by the parents 

please see atached links

https://www.researchgate.net/deref/http%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fpubmed%2F25935178