Dear Rebeca, 

There are some paper on this issue:

Article Grief and Post-Traumatic Growth in Parents 2–6 Years after t...

Article A Study on Visual Representation of Medical Family Tree Usin...

Article A review of the issues and challenges involved in using part...

Conference Paper Reflections of psychoneuroendocrinology in the visual arts

Dear Béatrice,

Thank you!! Those articles seem really interesting!!

Have you thought of including film? (I have been involved in some disability documentary film making.) Besides mainstream representations in conventional media where those with illnesses and disabilities are often approached as victims, you will find resistance, protest and critiques of mainstream representations of illness/the ill/grief in the fare of well-established international film festivals. Many of the works can be found online. E.g., see:

http://superfestfilm.com/

http://otherfilmfestival.com/

http://www.ptff.org/

http://reelabilities.org/

http://kinofest.org/en/

http://www.disabilityfilmfest.org/

http://www.together2012.org.uk/together-2015-disability-history-month-festival/together-2015-disability-film-festival/

Good luck!

http://www.together2012.org.uk/together-2015-disability-history-month-festival/together-2015-disability-film-festival/

http://www.disabilityfilmfest.org/

http://kinofest.org/en/

http://reelabilities.org/

http://www.ptff.org/

http://otherfilmfestival.com/

http://superfestfilm.com/

Thank you, Anitra,

Your comment is really useful and full of references. I will watch them, may be they share characteristics with the photographical projects.

A blog with a lot of references (in spanish)

www.psiquifotos.com

A blog with a lot of references (in spanish)

www.psiquifotos.com

Rebeca:

I've devoted much of my own career to this topic. Here's one reference "Disease Prevention and the Biomedical Image"  http://www.ncbi.nlm.nih.gov/pubmed/8501020

Best of luck. Please let me know if I can provide any further information.

[email protected]

or

[email protected]  

Carlos,

Thank you! I didn't knew this blog and it seems that it will be really helpful.

I see that not only we both work for the CEU Universities, but we also studied in UNAV: a pleasure to "meet" you.

David,

Thank you for the reference. I cannot read the article as I don't have access, but I think it's about medical images and my research interest is about images related with illness outside of the medical side: artists, patients, caregivers and relatives...

However, I'm really impress with your photographic project about Twins. It is very interesting and very rare to see such a creative approach (and such good photographs and coherent project) made by a doctor. Congratulations!!! Do you have any other photographic creative or artistic project online that I can see?

The article is specifically about the use of imagery to change behavior, to prevent disease, to invoke governmental reform, etc.. I'm very interested in how medical imagery can be used socially to help with NON-medical needs.  

I'll try to create PDFs to upload here or to email. I've thought of several other papers you'd probably like to see as well. You may also want to check out the links below.

dt

www.davidteplica.com

https://www.youtube.com/watch?v=XsImzE4XIoQ

www.modelmayhem/1041163

Your research is very relevant as social media allow people with illness to personally tell their stories online with photographs, which may include patient condition and MRI result. Parents may post online photos about their children's illness, too. See some links below:

http://www.huffingtonpost.co.uk/2015/12/01/brca1-gene-linked-to-alzheimers_n_8686410.html

http://www.huffingtonpost.co.uk/2015/12/11/alzheimers-disease-son-mum-video-youtube_n_8781088.html

http://www.mirror.co.uk/news/world-news/gaunt-man-mocked-viral-meme-7139091

http://www.npr.org/sections/health-shots/2016/01/06/462138708/how-a-simple-bump-can-cause-an-insidious-brain-injury

Here's an old research on anticipatory grief:

http://www.mentalhealthacademy.net/journal_archive/cph0613.pdf

Thank you, Bobby!!

Potentially you could look at the use of hermeneutic photography as an aesthetic technique to enhance data - http://journals.lww.com/advancesinnursingscience/Abstract/1994/09000/Hermeneutic_photography__An_innovative_esthetic.7.aspx

Discuss areas of virtual storytelling http://qhr.sagepub.com/content/20/12/1677.short

Use of photography as a qualitative research tool http://journals.rcni.com/doi/abs/10.7748/nr2007.10.15.1.27.c6052

Hi Carol,  I authored the first article that is mentioned (Mary Enzman [Hagedorn] Hines) and I have used photography with a study with children with liver transplant and also with adolescents and smoking cessation as well.  I find this technique very complementary and have also published in Mental Health Journal.  I will attach the article.  Would be glad to talk to you more about this if it would be helpful! 

[email protected]

Thank you Carol Ellis and Mary Enzman-Hines, I will read them with great interest!!!

My dissertation used photography with families enduring childhood chronic illness.

It's really interesting, Mary. I'll will read it!!! Thank you!!