Hi Eleni-Christina,
I do not think there is such a questionnaire. In fact we are are an international
group of researchers who would like to develop such an instrument . We are currently looking for funding. Would you be interested to join us?
Best,
Martin
Hello,
Thank you for your answer. I am aware of the stigma scale for chronic illness and as I was searching for some screening tools I found a notification dated back in 2005 mentioning the development of the stigma scale for chronic pain. I looked it over but couldn't find any further information about it.
In case there is no such instrument I will be happy to join the team in developing it
Best regards
Eleni-Christina
We have been looking at pain scores and their measurement for some time. There are some fundamental problems which are often ignored in pain score assessments, and have difficulties with the current scales. The current scales are nonparametric, and therefore difficult to to obtain any valid statistical data from them. The 2nd, and probably more fundamental problem is that, in the perception of pain, patients generally remember the severity but the duration of the pain is not so well remembered. Further, the pain level is generally related to the patient's past history of pain experience. So, if the most severe pain a patient has perceived is a headache, then a total knee replacement is agony. After thoracotomy pain, however, a total knee replacement is not so bad. So, it is difficult to arrive at a reliable measurement tool.
Hi Eleni-Christina,
It looks like this measure was developed as a part of a dissertation by Patricia Reed. You may be able to request the full text here:
https://www.researchgate.net/publication/34185872_Chronic_pain_stigma__development_of_the_Chronic_Pain_Stigma_Scale_
Best wishes,
Kelsey
Article Chronic Pain Stigma: Development of the Chronic Pain Stigma Scale
Sorry to be late in this discussion ... I just saw your post as I was scanning the internet before I use the scale AGAIN. I have used one question, and modified one question from the scale for my paper (details included):
Nguyen RH, Turner RM, Rydell SA, Maclehose RF, Harlow BL. Perceived
stereotyping and seeking care for chronic vulvar pain. Pain Med. 2013
Oct;14(10):1461-7. doi: 10.1111/pme.12151. Epub 2013 Jun 6. PubMed PMID:
23742116; PubMed Central PMCID: PMC4036065.
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