In countries without assisted PD funding...
How to overcome the difficulty in delivering assistance in peritoneal dialysis - when there isn't a family member available for such care? suggestions, experiences... with volunteers? medical or nursing students? if paid work, how to gather funding?
(a question from Portugal, but with a problematic similar in Mediterranean countries)
Dear Anabela,
You hit a very hot topic and I am adding my voice to you. I am originally from a Mediterranean country where we significantly struggle with such problem. We have the acute PD catheter and also the Permanent peritoneal catheter, then we get stuck how will we maintain chronic PD. After I observed the tools in the the UK and in the Western countries; I felt really sorry for all the children we have backhome. The problem is
a) lack of CAPD machine
b) No trained nurses or doctors or parents to do the job
c) No dedicated PD fluids or proper connections for that.
My suggested solutions (I am sure I can be wrong), but to think about:
a) Used, or unwanted CAPD machines from UK, Germany, France, .... to be redistributed to needy country.
b) Funds from ESPN and IPNA to train and supervise such practice and to give the appropriate training.
c) Donations of CAPD devices from the manufacturers as we will sustain the practice later.
c) Trial of funds from celebrities (for example you can try CR7) who are generally very generous once our voice reach them. This will add heavy weight to solve that.
I am happy to participate at any stage if there is a program that we can develop to help these children. The main treatment modality at the moment for children with ESRD is HD (this is for my country).
Kind regards ,
Dr Sameh Abdulsamea
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