A Danish colleague has shared relevant insights into supporting self-management in chronic illness, in particular of vulnerable groups like people with mental health problems or those who are long-term unemployed.
The challenges in Denmark shared by a lot of programs / interventions world wide I guess:
- How to reach those most in need?
- How to successfully cooperate with other health care and social service organizations in order to provide better access to programs?
As we face similar challenges in Switzerland it would be great to hear some suggestions, experiences and/or links to publications on the subject of matter.
http://blog.careum.ch/blog/koproduktion-4/
Hello Joerg
Our experience in a 3rd World country is slightly different from Steffi - here we engage the leaders of a community to take our message out to the people. Using the leaders (elders) as a medium of engagement we have had much more success in reaching those who are vulnerable as they mostly "hide" from the outside world.
Regards
NIco
Hi Joerg,
I would reach out through peer support networks. There is already a demonstrated interest in self-management if people are seeking support from peers. If there is a way to engage the community as collaborative partners in your work all the better. Good luck and thanks for asking such an important question.
Dear Steffi, Nico and Neasa,
thanks so much for your thouhts and suggestions! I will look into articles and details on your profiles.
May I encourage you to also share your replys on Nicolaj's blog post where he adresses the question we have discussed here? Link: http://blog.careum.ch/blog/koproduktion-4/
I totally agree on the importance of peers in recruiting hard-to-reach groups. This was also the key message in one of the comments left two days ago on Nicolaj's blog post. There, the importance of interpersonal communication along social lines of knowledge exchange was mentioned with an emphasis on "peer-to-peer" support.
Again, thanks for your thoughts!
Joerg
We recruited about 650 secondary mental health service users for our initial self-management interventions using a variety of approaches. We published the development and delivery of the intervention here:
https://www.researchgate.net/publication/263125776_A_new_self-management_intervention_for_people_with_severe_psychiatric_diagnoses
We have two papers on the findings, I can give you details on these as well. We recruited through voluntary sector organisations (NGOs) and also held public meetings and had information stalls in public places.
We have developed two variants that are currently underway one with single parents and one with prisoners. We have been reasonably successful at recruiting for both using similar techniques.
Article A new self‐management intervention for people with severe ps...
Dear David,
thanks for adding these very useful experiences and insights! I am looking forward to reading the articles you have suggested.
Using co-design to develop an intervention including a peer-led approach is most definitely patient-centred. And the on-going peer support mentioned in the abstract is something that people attending small group workshops mention as missing in the Stanford model.
All the best, Joerg
Hi. You might check out the NYU DREAM Program that uses Bengali community health workers to support self management around diabetes in the Bengali community. They also have similar programs for other heard to reach communities. http://www.med.nyu.edu/asian-health/research/dream/dream-about-us
Lots of work on self management support for chronic disease has also been done in First Nations Communities.
Thanks, Damara, for adding this useful resource to the discussion!
Let me also share a link to a publication (see below) that has been recently published on self-management support for minority-ethnic and/or socially-deprived groups. These authors also emphasize the importance of cultural awareness as well as having strong community links.
All the best, Joerg
http://www.biomedcentral.com/1472-6963/15/54
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