The key points of the focus groups were as follows: Experiences/issues with the HIV diagnosis, treatment and medication; Challenges of living with HIV, e.g., health services and community life; Stigma and segregation of people living with HIV.
Self-stigma is important. People with stigmatised states such as HIV, tuberculosis, hepatitis C, and people in stigmatised groups such as sex workers, tend to stigmatise themselves to an even greater degree than those around them stigmatise them.
You should check out Nadine Ferris France here on RG, who is doing some remarkable work on this. (I say this as a member of team – she's frankly inspirational!).
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I think the current burden depends really on the contexts. It is obvious that the challenges living with HIV in rural sub-Saharan Africa will be different from living in London with the disease. So health systems, healthcare delivery, social determinants, persisting issues of stigma and social exclusion, employment related issues, access to medicine, regular monitoring of CD4 count etc. This will really depend on the location of the individual.
Absolutely, Daniel Kwakye Nomah – so many people dear to me in Kenya died of HIV/AIDS. You realise that the infectious diseases that are rare in wealthy countries are everywhere in poor communities, and make living with and dying of AIDS a grim destiny.
Intrinsic could include self stigma, poor adherence, depression etc while extrinsic are externally induced by discrimination, adverse drug reactions and frequent attack by opportunistic infections
As a public health physician with over a decade experience in both clinical and community practice, Africa still has a long way to go in achieving epidemic HIV control by 2030 (SDG). Worsening socio-economic status and illiteracy continues to worsen health outcomes especially HIV infection. So worrisome is the fact, that many of the PLHIV holds false cultural and religious beliefs that are detrimental to their health as well as adherence on ART and thus causing increasing morbidity and mortality. Unfortunately, Children and Adolescents living with HIV in Africa are worst hit.