We are planning a study to understand how patients approaching the end of life (from cancer or other advanced diseases) access medicines for symptom management.
We wish to collect data on issues such as circumstances of new or repeat prescriptions, who was contacted, how, effort and time taken to receive prescription, any incorrect or duplicate medicines received, and satisfaction with information about medicines given at each point of contact.
Does anyone have any experience with this approach or is aware of studies that have reported on medicines access experience in any health care field?
Thank you!
Hello Prof Bennett
This relates to electronic health records - I think medication is included:
Pagliari, C., Detmer, D., & Singleton, P. (2007). Potential of electronic personal health records. British Medical Journal, 7615, 330.
http://www.nhitunderserved.org/resources/media/documents/PHR_Potential.pdf
This is similar:
Stokes, J. P. T. (2002). Electronic Diaries, Part 1: What Is a Subject Diary, and How Do Regulations Apply?.
http://www.appliedclinicaltrialsonline.com/electronic-diaries-part-1-what-subject-diary-and-how-do-regulations-apply
I don't think I've really answered the question, so will be interested to read other responses.
Very beat wishes,
Mary
I conducted a customer survey as part of my DPharm studies at the University of Bradford (currently in progress) looking at timely access to palliative care medicines from community pharmacies.
The customer survey was conducted on patients/carers/relatives dropping off a palliative care prescription to participating community pharmacies. The survey collected information on reason for pharmacy visit, how often they use the pharmacy, whether all items on the prescription were available, and whether they needed to go to more than one pharmacy. There was a free-text section to allow customers to make suggestions on improving the visit.
A separate data instrument was used by community pharmacy teams to collect information on the time it took to dispense the palliative care prescription from receipt in the pharmacy till ready for collection/delivery, whether the prescription was acute/repeat/electronic as well as any errors or interventions on the prescription.
I completed 55 customer surveys across 75 data collections (palliative care prescriptions). The thesis will be completed this year and will be available on Bradford Scholars.
Michael,
My personal experience would suggest that Hospice care nurses would be a great resource for your study question.
Best wishes,
Christopher
You may already be aware of this trial. I am not sure if there is any crossover, see link to NCARE trial below. http://www.nottingham.ac.uk/research/groups/ncare/projects/managing-medicines-for-patients-with-serious-illness-being-cared-for-at-home.aspx
- Badges
- Science topic
- Similar topics
- Statistics
- Survey