MODY (Maturity Onset Diabetes Young ) is a mutation in a single gene & inherited as an autosomal dominant . If one of the parent has this gene mutation , any child of that parent, has a 50% chance of inheriting. If inherited he/she will generally have MODY before they’re 25, whatever their weight, lifestyle, ethnicity etc.

1. Genetics of Diabetes Education Program (GDEP)

• Focus: This program educates patients and families about the genetic aspects of MODY and provides personalized diabetes management strategies.
• Topics Covered: Genetic testing, understanding MODY, personalized treatment plans, and lifestyle modifications.
• Format: Workshops, one-on-one sessions, and online resources.

2. Monogenic Diabetes Family Support Groups

• Focus: These support groups often include educational sessions tailored for families dealing with monogenic diabetes, including MODY.
• Topics Covered: Peer support, nutritional guidance, diabetes management, and psychological support.
• Format: In-person meetings, virtual meetings, and online forums.

3. The KICK-OFF Study

• Focus: Aimed at young people with diabetes, this intervention includes education on diet, exercise, and diabetes management.
• Topics Covered: Nutritional education, exercise routines, and personalized diabetes care plans.
• Format: Workshops, group sessions, and individual counseling.

4. University-based Diabetes Education Programs

• Examples: Programs at institutions like the University of Exeter and the University of Chicago, which are known for their work in monogenic diabetes.
• Topics Covered: Genetic counseling, dietary advice, lifestyle management, and ongoing diabetes education.
• Format: Lectures, seminars, and interactive workshops.

5. Customized Nutritional Programs

• Focus: Many diabetes clinics offer specialized nutritional programs tailored to children and young people with MODY.
• Topics Covered: Personalized diet plans, understanding carbohydrate counting, managing blood glucose levels through diet, and healthy eating habits.
• Format: Nutritionist consultations, group classes, and online modules.

6. Online Resources and Webinars

• Providers: Organizations like Diabetes UK and the American Diabetes Association (ADA) offer webinars and online courses focused on monogenic diabetes.
• Topics Covered: Genetic education, lifestyle management, and nutritional advice.
• Format: Webinars, online courses, and downloadable materials.

7. Camp Programs

• Focus: Diabetes camps that include educational components specifically designed for children with MODY.
• Examples: Camps like Camp Sweeney and Camp Kudzu, which provide tailored education and support for managing diabetes.
• Topics Covered: Diabetes management, nutrition, physical activity, and peer support.
• Format: Camp sessions with interactive learning and activities.

8. Hospital-based Education Programs

• Focus: Many pediatric diabetes centers offer comprehensive education programs for children with MODY.
• Topics Covered: Diabetes management, understanding the genetic aspects of MODY, nutritional counseling, and psychosocial support.
• Format: Inpatient and outpatient educational sessions, workshops, and family counseling.

Steps to Access These Programs: