I have been journaling my "fight to survive" as a DMT1 post Covid Omicron x13 days "survivor".
I have been in and out of DKA and noticed the first time ever that unbeknownst to me, my glucose was at 782. I had an instant rage come over me and the more my husband tried to comfort me, the more dishes I threw and broke. I have never acted out like this and I had no control of myself.
My husband said my eyes looked like I wanted to hurt him. I am the biggest love bug but now.... glucose over 300 sends me into an angry mood that I am aware of and I now immediately test my sugar.
I also, stop working, walk outside and breathe fresh air. It is a literal "fight for your life" being in and out of critical DKA and the ICU every few weeks for 4 months,
What if it is the occurence of diabetic encephalopathy and not cortisol? What is happening in the organs, is there a parasite, tropical illness or another co-infection? Sandra Anneman Rn Fache
Erika Dugan It appears that after Glucose is above 300 but especially 600 in DKA we become infuriated with an uncontrollable rage. I thought I read it had to do with too much Glucose fogging the brain. I can try to control it but the kids are on all types of psych meds going crazy
Sandra Anneman Rn Fache I would not socialize uncontrollable rage for all but understand it is a potential and why. What is going on physically? I do not call talking louder, explaining more, frustrated and crying or telling someone what you need and they not listening rage at all. One size never fits all. That is why the US does not have socialized medicine.
I can only explain your statements as false endpoints and psych meds as another mitigation of illness like insulin and bp meds. Could this help you to see more?
You have no idea if you have microscopic molecular level parasites, you assume. Prove to me you do not. Ask me questions about why you believe you do not. It's a dna test and relates to findings there not just an easy positive, not a pcr test always our technology is lacking on the general city to city lab areas. When you cannot get to the heart of biology your providers have to treat the symptoms. These meds were made to treat the symptoms. Why are you on research gate but you do not ask why do I need insulin what is making my glucose rage?
Social conditioning and beliefs are the problem. Could this help to open your mind to other science? This is just my work I connect to and know is true in my community, I am not studying what happened to you or yours it could be different, that one size never fits all again. I know the trying to control it for the sugars and it depends on weather, pressure and co-infections for some of us and not just sugar and food. In fact sometimes eating sugar helps the beta cells and brings the sugar down but if you are floating around 600 it is better to go to help at the ER instead of try that. You are right with the over 300 I have that data too.
Maybe these presentations in my immersion phase of academia can help you see more getting to the biology:
https://www.youtube.com/watch?v=Ja8JvNS-pEY
https://www.youtube.com/watch?v=TrtOC1CKg1s
My mom has died since maybe not getting some of those answers. It hurts. I have done this connecting science work, I am not winning anything just collaborating with you on what I see, know, and connect.
I was involved early in medical education about metabolic syndrome for my city's doctors I know how when there is not answers we have to treat the symptoms as a professional. This is before it happened to some in my family I can connect to infections. An uptick in viruses too before COVID. I am frustrated too but do better staying on top of my own infections even if it means fighting to get that done, documenting and proving. I am not the first sufferer to become a researcher or use graduate education to put together the pieces of a puzzle from the professional life. Remember as people who work in science we have to move from one question to another that is why I connected well as a trained journalist. That is how I was trained in undergrad too. It is hard when you are sick too but please remember you are answering questions with facts and not assuming or believing. When no answers a provider has to treat the symptoms, status quo until you know. I do have facts and data to support. Keep taking care of you. Hugs!
Sandra Anneman Rn Fache Just sending some love in this one now. I know that your FACHE designation means you have a commitment to service and doing what is right and that has been so confusing and hard in medicine. I felt compassion reading about your possible "long COVID" as my city might call it for you. Not all nurses who got COVID have long COVID. Why do you I want you to ask yourself? I know one who worked in one of the largest city units in our country she seems well and fine so far, traveling and doing many things. Why are your struggles with blood sugars different? Use the keywords in research to find yourself and you will also find more compassion for others you care for. Look at plants, birds, animals in your local ecosystem, compare to the past. Never stop learning.
If I was an RN going back to work after this mess I would reset each day explaining to patients we are learning more and digging deeper into biology. We know you are sick and need help. For now we can work on finding infections, understanding your personal biology and mitigating things to help you keep or get back your quality of life. Listen to your body help it with its limits do not push it too far.
My thoughts are with you, I have been trained to give infusions at home and act like a nurse designated with a patient centered home for survival. But I do not want to be a nurse and am grateful for people like you and want to help you be well too. It is a full time job managing your own blood sugars like that, keep seeking answers please tell me you have a continuous glucose monitor. Put your husband on it, sounds like he has incentive to remind you to eat and care about where you are. He can remind you to do a shot x time before you eat. Remind you to eat when you do not feel hungry maybe. Try when you are close to normal to talk to him about what you like or need for support. Support is a hard job too, as a nurse you know. More hugs! All the best for your journey.
If you asked something about hyperlipidemia that has to do with dioxin and tthm exposures from water systems per the arnold school of public health and facts from my community as a match or lesions from parasites in your liver as just a few examples. Sometimes a mechanism of saving your organs or the effects of the fight to save you from the virus. Keep learning, the body is amazing not just trouble. Infrastructure matters too, the world is working on that too. Balance takes time. Be kind to yourself you are not out of the woods yet.
- Badges
- Science topic
- Similar topics
- Journal Impact Factor