I would like to examine the role of emotions regulation strategies for the context of stigma through subjective disease repressions and quality of life in patients with narcolepsy and cataplexy. For this purpose, I would like to use the questionnaire inventories to collect the subjectively perceived stigma caused by the disease narcolepsy and cataplexy.
Dear Winfried,
have you read this paper?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4405359/
These authors have used the Stigma and Social Impact Scale (SSIS) (Fibe & Wright, 2000) and the Disclosure Concerns scale (Berger, Ferrans, & Lashley, 2001) for measuring health-related stigma in narcolepsy.
Best regards,
Alejandro
There are lots of stigma-related scales out there. The links I'm attaching here should take you to three such sources.
https://msrc.fsu.edu/system/files/Britt%20et%20al%202008%20Perceived%20stigma%20and%20barriers%20to%20care%20for%20psychological%20treatment--%20implications%20for%20reactions%20to%20stressors%20in%20different%20contexts.pdf
Article The Stigma Scale: Development of a Standardised Measure of t...
Article Mental Health Consumers’ Experience of Stigma
Dear Alejandro,
thank you very much for the link to the paper using the SSIS! It was very helpful!
Best regards,
Winfried
Dear Professor Joy,
thank you very much for your link list. There are really very helpful links for my planning!
Best regards,
Winfried Pollmann
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