Hello! My study involves talking to the parents of severely disabled adults about their support network (formal and informal) in meeting long-term care and well being needs of their adult children. I found some studies concerning parenting a disabled child but not much with a specific focus on the support needs (or support structure) of severely disabled people and their families? Any suggestions please....
Thank you Katja, I look forward to reading the article when published.
Graungaard AH, Andersen JS, Skov L.When resources get sparse: a longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities. Health (London). 2011 Mar;15(2):115-36
McConkey R, Gent C, Scowcroft E.Critical features of short break and community support services to families and disabled young people whose behaviour is severely challenging.J Intellect Disabil. 2011 Dec;15(4):252-68. Review.
This article might help http://www.questia.com/library/journal/1P3-2803130141/cognitive-vulnerability-and-adjustment-to-having-a
Dear Tatyana, Oana and Gerolf
Thanks to you all for giving me such nice leads. Very helpful indeed.
Nga mihi (Kind regards in Maori)
Hemant
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