Hi,
For your question, kindly see the following links:
https://pantherfile.uwm.edu/kemosack/www/PatientLab/doc/3_Reasons%20for%20HIV%20disclosure%20or%20nondisclosure.pdf
http://www.ncbi.nlm.nih.gov/pubmed/25658105
http://www.biomedcentral.com/1471-2458/14/746
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0118157
http://ihi.eprints.org/1670/1/Jamilla_A._Mwanga.pdf
http://www.aidsmap.com/Challenges-associated-with-disclosing-ones-HIV-positive-status/page/1442642/
With regards.
Hi Aishan,
Here's a link to a useful site as well as some simple steps/ a basic overview. (Obviously relevant to our SA issues).
Hope it helps.
Regards
Saranne
Look at : Positive Women's Network
HIV and Intimacy: Making Connections Work - Positive Women's Network
http://pwn.bc.ca/hiv-community/hiv-dating-and-relationships/hiv-and-intimacy-making-connections-work/
What is disclosure in HIV?
o Disclosure means telling other people about your HIV status
o It is sometimes very difficult to disclose – because some people (who don’t understand about HIV) still discriminate against HIV+ people.
o Therefore you need to make sure that the disclosure is safe for you
o The counsellor will help you make the decision.
o It is your decision – and that decision will be respected
There are different types of disclosure:
· Non-disclosure means that you do not tell anyone about your HIV status
· Partial disclosure means that you only tell some people about your HIV status
· Voluntary disclosure means you choose to share information about your HIV status.
· Involuntary disclosure is when your status is revealed without your permission or even without your knowledge.
· Full disclosure is when you reveal your HIV status to anyone, including the public in general.
Advantages of disclosure
o Help access medical services, care and support
o Help protect self and others from re-infection
o May help women negotiate for safer sex
o Influence others to avoid infection
o Help reduce stigma and discrimination about AIDS as more people disclose
o Can reduce rumours and suspicion if person has symptoms
o Helps family plan for future
Possible disadvantages of disclosure
o Problems with relationships with sexual partner, family and friends, the community and people you work with.
Sometimes it seems that there will be so many problems to face if you disclose your HIV status - but not telling people can also have some consequences.
Possible consequences of non-disclosure
o You will have to deal with everything on your own without the support of family and friends
o You might put other people at risk of HIV infection – and risk re-infection yourself
o You might not be able to get the right medical care, counselling and support
o Adherence to ARV’s might be a problem due to keeping pill- taking a secret and lack of support
Weighing up the choices
Step by step to safe disclosure - some tips
Make sure you want to disclose
Take your time
Disclosure is a process- not a one-off event
There are lots of steps to follow
A good counsellor can support and reassure and help you to accept yourself positively
Plan how, when you are going to disclose.
Identify support – (church, support groups, counselling organisations)
Once you have decided to disclose, it may be easier to first tell someone who is really close to you – someone who you can trust
Think about sexual partner who need protection from infection
What is the level of knowledge and emotional state of the person you are going to disclose to? This will help you decide how much to tell them and how to avoid too much trauma for both of you
Be prepared for shocked and angry reactions. This often happens but most people close to you will accept your HIV status after a time has passed
You need to be very strong when you disclose – allowing others to express their feelings and worries. After some time you can work on these issues together
Look after yourself. Find positive ways of coping with stress and anger.
If you decide to disclose it is important to take your time and think through all of the points carefully.
Disclosure is like a journey.
You start the journey when you decide that it is time to disclose.
You also need to decide to decide whether you will disclose fully or partially.
Aishan,
You can also request Authors of the below study
article http://webcache.googleusercontent.com/search?q=cache:H8bDsxmCrTQJ:www.researchgate.net/profile/Kebede_Deribe/publication/233938333_HIV-positive_status_disclosure_among_men_and_women_receiving_antiretroviral_treatment_in_eastern_Ethiopia/links/0fcfd50e9694dbbbd7000000.pdf+&cd=1&hl=en&ct=clnk&gl=au
Article HIV-positive status disclosure among men and women receiving...
We have just published the following article on disclosure, ''A cross-sectional study of the magnitude, barriers, and outcomes of HIV status disclosure among women participating in a perinatal HIV transmission study, “the Nevirapine Repeat
Pregnancy study”
http://www.biomedcentral.com/1471-2458/15/988. The variables are well described.
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