This rare disease can cause a high impairment of the the quality of life. To my knowledge there is no sufficient therapy.
Hav eyou tried with David Berceli's exercises?
He developed this serie of exercises to release the stress of the body as a result of prior trauma.
Hello Dr Dieckmann
I found this paper that lists massage, cold soaks, chiropractor-delivered therapy, or acupuncture for this condition (see paragraph regarding pain treatment) but gives little further information:
Hassan, A., Mateen, F. J., Coon, E. A., & Ahlskog, J. E. (2012). Painful legs and moving toes syndrome: a 76-patient case series. Archives of neurology, 69(8), 1032-1038.
http://archneur.jamanetwork.com/article.aspx?articleid=1151843#noc120007t4
Likewise, in this paper, the application of local cold, heat, or tactile stimulation is listed (Table 29.3) but again, not discussed:
Reich, S. G. (2010). Painful legs and moving toes. Handbook of clinical neurology, 100, 375-383.
http://www.sciencedirect.com/science/article/pii/B978044452014200029X
I could not find an abstract to this paper, but wondered if it would be of any help:
Stone, J., & Erro, R. (2014). Functional (psychogenic) painful legs moving toes syndrome. Movement Disorders, 29(13), 1701-1702.
https://www.researchgate.net/publication/266679090_Functional_%28Psychogenic%29_Painful_Legs_Moving_Toes_Syndrome
I hope you find something effective.
Very best wishes
Mary
Article Functional (Psychogenic) Painful Legs Moving Toes Syndrome
Some papers:
Article Painful leg lesions: A Case Report
Article Painful leg and moving toes syndrome in secondary tethered c...
Article Painful leg and moving toes syndrome
This was an unexspected number of articles of a rare syndrome. I have requested theses articles and hope to find an answer. Thank You!
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