I would recommend to contact the therapeutic hypothermia group around Prof Sterz and Prof Holzer at the Medical University of Vienna

bestregars

Michael Hüpfl

Margaret Herridge (University of Toronto) has published on this topic

We used to track readmission within 72 hours of ICU discharge for same reason .

Of course 28-days survival after ICU is also an indicator for Quality of ICU Care

There are several studies published in high-impact journals such as JAMA and NEJM about quality of life after ICU and ARDS/sepsis. Check the canadian critical care trials group recent paper on NEJM. The paper is free and the link is: http://www.nejm.org/doi/full/10.1056/NEJMoa1011802. Regards.

We have started a study based on these two indicators>> I can attache some of the publications that we have relied on!

Thanking everyone for these useful comments.

The problem focuses on knowing the factors surrounding the critical patient and consider methodologies for the monitoring of the quality of life, mortality and functional status, at least past 6 months from critical illness

QoL 6 months after Cardiac Arrest ist good (Eisenburger et al, Resuscitation 1998), although our study used a non-validated questionnaire. Patients with a cerebral performance category of 4 were not included. People appreciate their second chance despite neurological damage. Fears of the relatives that it might happen again should be considered as well. Our patients and emergency medical personnel meet about once a year in a big reunion, together with their relatives. These meetings are perceived to be nice for patients (who see that they are not alone with their strange/unnatural existence) and are very inspiring to us to make efforts in research, teaching and clinical treatment.

Make an effort to take a photo with your ICU patients after discharge from hospital and post it on the wall in your department. Best wishes Philip Eisenburger

My colleagues in Bergen, Norway have a long line of investigation on the matter. One overview is:

Mental and physical disorders after ICU discharge.

Flaatten H. Curr Opin Crit Care. 2010 Oct;16(5):510-5. Review.

PMID:

20613500

[PubMed - indexed for MEDLINE]

I have done a very extensive study in this topic. 28-month-followup after ICU discharge. Data collection of this work was finished and i am trying for data analysis and other procedures.

Dr Vahedian Azimi

My question is Are there any reliable studies on quality of life post pediatric intensive care unit ...thank you

There are several studies published in high-impact journals such as JAMA and NEJM about quality of life after ICU and ARDS/sepsis

We've been looking at QOL following AKI in intensive care. The attached article is a good prospective study from France with a table summarising the literature at the end.

"Obviously, the quality of life depends primarily upon the reason that the patient was admitted to the ICU originally."

I disagree, Anthony. There are many aspects of ICU management that may impair HRQOL after discharge. Among these are CV deconditioning, muscle atrophy, the long-term adverse cognitive effects of ICU-related delirium, and the lingering effects of ICU complications such as ARDS, hospital-acquired pneumonia, DVT/PE, pressure ulcer, and undernutrition/catabolism.

The evidence shows that competent an compassionate care does not mitigate the adverse effects of an ICU stay, unfortunately. This is particularly true for older adults, who make up the majority of the ICU population. Thus the original question.

You should get hold of the following article:

Long-term quality of life in patients with acute respiratory distress syndrome requiring extracorporeal membrane oxygenation for refractory hypoxaemia

Hodgson CL, Hayes K, Everard T, Nichol A, Davies AR, Bailey MJ, Tuxen DV, Cooper DJ, Pellegrino V

Critical Care 2012, 16:R202 (19 October 2012)

All the best

To assess patients after exiting from the ICU is complex, interested in not only survival but also the quality of life depending on your previous state and type of disease in ICU

admission to high dependency care units may be a better option than prolonged length of stay in ICU, This both from a patient and health-costs point of view.

The problem with assessing HRQoL after ICU discharge is lack of a good measure. The EQ-5D and SF-36 have been recommended in a consensus statement. However, they have not been validated in the ICU population. Of course the challenge is the heterogenity of the population, whilst many themes are similar amongst ICU survivors, there are also disease specific outcomes that will impact HRQoL. This is perhaps why the EQ-5D and SF36 have been accepted without good validation, it is just too hard to validate.

Are there any reliable studies on quality of life post ICU admission - Yes, check this link - http://www.ncbi.nlm.nih.gov/pubmed?term=quality+of+life+lost+icu&cmd=DetailsSearch

are there long term effects occurring at significant amounts? - Yes, they tend to come back to ICU, QALY are decresed, they will have congnitive decline, not to forget PTSD and depression.

What are the parameters measure in these studies? - As mentioned above.

With D Hurel as first author, we conduct a prospective multicenter study" Quality of life 6 months after intensive care:results of a prospective multicenter study study using a generic health status scale and a satisfaction scale" Intensive Care Med 199è,23:331-337 ( fulltext on my profile);

the main results were:"the quality of life was mainly a function of the diagnosis, not of age and severity of illness;patients admitted forsuicide attempt or chronic obstruction pulonary disease fared poorly"

Within the perceived quality of life scale, patients exprimed dissatisfaction concerning recrational and professional activities.

See my full text article reviewing post critical care. I hope it is of some use for you. 

Article After Critical Care: Challenges in the Transition to Inpatie...