In addition to the SF-36, I would like to know if there are any unique test to these types of patients.
Yes, yes you could use the WHOQOL-HIVBREF which has 31 items and another is with 100 items.
the WHOQOL-BREF was used by us as it has been shown validity in 5 of the six domains.
....continuing from above.... Understanding the validity reported by Malay study we also used it our study.
This has been developed for specific region eg we used one for Asia.
One of my collegues (dr Andrea Tramarin) worked in this field: I've found his paper published
Qual Life Res. 2006 Apr;15(3):377-90.
ISSQoL: a new questionnaire for evaluating the quality of life of people living with HIV in the HAART era.
Bucciardini R, Murri R, Guarinieri M, Starace F, Martini M, Vatrella A, Cafaro L, Fantoni M, Grisetti R, Monforte Ad, Fragola V, Arcieri R, Del Borgo C, Tramarin A, Massella M, Lorenzetti D, Vella S.
You could use the Medical Outcomes Study for HIV (MOS-HIV). It was developed and validated in the pre ART era, so there are problems, but it gives a mental health summary score and physical health summary score, which are useful.
More details here:
http://www.jhsph.edu/research/affiliated-programs/medical-outcomes-study-HIV/
What about the FAHI - part of the Functional Assessment of Cancer series of questionnaires specific to HIV I believe.
HIV/AIDS-Targeted Quality of Life Instrument
© 1999, William C. Holmes, M.D., M.S.C.E.
The SF-36 Scale is another one you can use. The SF-36 is a multi-purpose, short-form health survey with only 36 questions. It yields an 8-scale profile of functional health and well-being scores as well as psychometrically-based physical and mental health summary measures and a preference-based health utility index.
MOS-HIV Health survey is a good one. This is a disease specific version of SF 36. We get total scores, ranging from 0 - 100, for 10 different dimensions of HRQoL, and overall Physical and mental health summary scores. For four dimensions, the items are same as SF 36. Hence, we can compare the HRQoL of HIV population with general population if normative values are available. However, it doesn't have items related to medication concerns, sexual life issues, and stigma and disclosure issues
PROQOL by the Paris group is another new one in the field. We have developed one more psychometric scale in our institute which is already validated among the HIV positives.
The MOS-HIV is the standard. Derived from the SF-36, it is commercially available from Quintiles(?) but can be viewed in literature search.
The WHO QOL-HIV BREF questionnaire on quality of life has been developed by WHO for Asian region . It has been validated, reported and published. It has 31 item BREF-f version and 100 item long version for PLHIV. This measures quality of life in six domains.
A escala HAT-QoL é um instrumento que avalia a qualidade de vida de pessoas com HIV/aids. Ele foi construído especificamente para essa população. Possui 42 itens.
Veja no link: http://www.scielosp.org/scielo.php?pid=S0102-311X2004000200010&script=sci_abstract&tlng=enen
The PROQOL-HIV is probably the most recent HIV-specific health-related quality of life scale (I am a co-author). It was validated with patients in 9 countries across 11 languages, including Brazil in Portuguese (co-author Dr Mauro Schechter, Federal University of Rio de Janeiro, Brazil). It has been validated in both paper and electronic formats. There are separate publications available on the scale's development, psychometric validation, and paper vs electronic validation.
Lalanne, C., Herrmann, S., Armstrong, A., Cheung-Lung, C., Schwartz, Y., Chassany, O., & Duračinský, M. (2013). Paper-based and electronic assessment of health-related quality of life specific to HIV disease: A reliability study with the PROQOL-HIV questionnaire. Value in Health, 16(7), A362-A362.
Duračinský, M., Herrmann, S., Berzins, B., Armstrong, A.R., Kohli, R., Le Coeur, S., Diouf, A., Fournier, I., Schechter, M., & Chassany, O. (2012). The development of PROQOL-HIV: An international instrument to assess the health-related quality of life of persons living with HIV/AIDS. Journal of Acquired Immune Deficiency Syndromes. 59(5):498-505.
Duračinský, M, Lalanne, C., Le Coeur, S., Herrmann, S., Berzins, B., Armstrong, A.R., Lau, J., Fournier-Nicolle, I., Sow, S., & Chassany, O. (2012). Psychometric validation of the PROQOL-HIV questionnaire, a new health-related quality of life instrument specific to HIV disease. Journal of Acquired Immune Deficiency Syndromes. 59(5):506-515.
We have used the WHOQOL-HIV BREF for our study on PLHIVs . This has been used for across sectional study in India and published.The six domain analysis is useful.
Hi Miguel, email me at [email protected] , and i will send you a copy of the questionnaire. Best, Andrew
We published a small review on instruments used to measure quality of life in people with HIV/AIDS. The SF-36 and the MOS-HIV turned out to be most widely used:
Article More Than 20 Years of Research into the Quality of Life of P...
Where I can get SPSS syntax file that automatically checks, recodes data and computes domain scores ? for QOL of HIV patients?
I am undertaking research on QOL of HIV patients using WHOQOL-HIV BREF