You should consider looking at disease modifying environmental factors which can interact with a genetic predisposition to thereby unmask latent disease resulting in a younger age at onset.
Perhaps you can get in touch with a support group- which can provide a plethora of information, one that I am familiar with is The Without Warning group at Rush- they have a website (below) and may be a good resource to reach out to:
As for treatment of behavioral problems associated with dementia sedative hypnotics such as benzodiazepines can be a problem for many patients as these can exacerbate learning and memory problems.
Psychological treatments for dementia may include validation therapy, reminiscence therapy, reality orientation, music therapy and art therapy. It may be worth checking these out in your search with early onset dementia.
Further to "What should be in a self-management programme for people with early dementia?"... you might want to consider sleep quality, as growing evidence shows it to be an independent risk factor for mild cognitive impairment and dementia.
Article Buying time: A rationale for examining the use of circadian ...
In the dementia, the most common form “Alzheimer’s disease” was found at the age 50s of a patient’s case study by a German Psychiatrists Alois Alzheimer, in Germany. It means, this is the landmark of early onset (EOD
You might find the data from our latest paper of interest. Although not dealing directly with the behavioral and psychology symptoms of dementia per se the combination of drugs we found to be effective can enhance GABAergic neurotransmission and thus would also be expected to attenuate anxiety in addition to normalizing the aberrant neural network activity implicated in mild cognitive impairment. Many patients with dementia experience anxiety especially in the early stages of the disease and thus, in certain populations enhancing inhibitory neurotransmission may not only ameliorate cognitive problems but may also attenuate anxiety.
http://www.ncbi.nlm.nih.gov/pubmed/25941121
You may also be interested in our work looking at the pharmacological management of anxiety disorders.