I'm looking for any articles/posters/papers that support this coping trajectories (non in the parents, only in the children/adolescence) in different serious illnesses
In our studies we have found that recency of diagnosis was related to coping strategies used.
Children more recently diagnosed with their chronic disease (0-6 months)
used less cognitive strategies than those children who are in the period
between 1 and 2 years from diagnosis.
We have also found that there are different trajectories between cancer diseases and rheumatic diseases.
Dear Alessandro,
Miss B...is about coping with paraplegia and ventilator assistance since childhood (8 yrs), it is still in proof form but leave your email address on a message to me and I'll send it. Coping in children with leukemia is on RG.
Article Aggression: the dominant psychological response in children ...
Article Miss B Pursues Death and Miss P Life in the Light of V. E. F...
Article Psychometric Investigation of Benefit Finding among Long-ter...
No, can't answer that question. I wonder though if children (like anyone else) aren't emotionally overwhelmed by a life-altering and possibly deadly diagnosis in the first few months. Denial, avoidance, depression are well-known first reactions, which almost exclude problem-oriented coping. After a few months, this will change and other strategies become possible, often helped by learning a third-person perspective from the doctors who treat them. In other words, so much is going in this complex process that it seems odd to focus too much on coping alone.
There was a paper published a couple of years back...I'm sorry I don't have the reference...that looked at longer term outcomes in terms of mental health in adolescents or children who had survived cancer that indicate survivors had poorer mental health and QoL. Sorry I can't be more precise. Don't generally work with kids.
You might want to look at Wendy Lam's work on trajectories of distress following breast cancer which may also provide you with some insights to help you build this area.
Lam WWT, Chan M, Hung WK, O A, Ho S. Bonanno G, Fielding R. Resilience to distress among Chinese women diagnosed with breast cancer, Psycho-Oncology, 2010, 19 1044-1051;
Lam WWT, Yee TS, Bonanno GA, Mancini AD, Fielding R. Distress trajectories during the first year following diagnosis of breast cancer in relation to 6-years survivorship. Psycho-Oncology, 2011, 21, 90-99
Lam WWT, Ye M, Fielding R. Trajectories of quality of life among Chinese patients diagnosed with nasopharynegeal cancer. PLoS One 2012, 7(9): e44022. doi:10.1371/journal.pone.0044022
Lam WWT, Soong I, Yau TK, Wong KY, Tsang J, Yeo W, Suen J, O WM, Sze WK, Ng A, Kwong A, Suen D, Fielding R. The evolution of psychological distress trajectories in women diagnosed with advanced breast cancer: a longitudinal study. Psycho-oncology doi: 10.1002/pon.3361
You might also want to look at Wendy Lam's work on trajectories of distress following breast cancer which may also provide you with some insights to help you build this area.
Lam WWT, Chan M, Hung WK, O A, Ho S. Bonanno G, Fielding R. Resilience to distress among Chinese women diagnosed with breast cancer, Psycho-Oncology, 2010, 19 1044-1051;
Lam WWT, Yee TS, Bonanno GA, Mancini AD, Fielding R. Distress trajectories during the first year following diagnosis of breast cancer in relation to 6-years survivorship. Psycho-Oncology, 2011, 21, 90-99
Lam WWT, Ye M, Fielding R. Trajectories of quality of life among Chinese patients diagnosed with nasopharynegeal cancer. PLoS One 2012, 7(9): e44022. doi:10.1371/journal.pone.0044022
Lam WWT, Soong I, Yau TK, Wong KY, Tsang J, Yeo W, Suen J, O WM, Sze WK, Ng A, Kwong A, Suen D, Fielding R. The evolution of psychological distress trajectories in women diagnosed with advanced breast cancer: a longitudinal study. Psycho-oncology doi: 10.1002/pon.3361
You might also want to look at Wendy Lam's work on trajectories of distress following breast cancer which may also provide you with some insights to help you build this area.
Lam WWT, Chan M, Hung WK, O A, Ho S. Bonanno G, Fielding R. Resilience to distress among Chinese women diagnosed with breast cancer, Psycho-Oncology, 2010, 19 1044-1051;
Lam WWT, Yee TS, Bonanno GA, Mancini AD, Fielding R. Distress trajectories during the first year following diagnosis of breast cancer in relation to 6-years survivorship. Psycho-Oncology, 2011, 21, 90-99
Lam WWT, Ye M, Fielding R. Trajectories of quality of life among Chinese patients diagnosed with nasopharynegeal cancer. PLoS One 2012, 7(9): e44022. doi:10.1371/journal.pone.0044022
Lam WWT, Soong I, Yau TK, Wong KY, Tsang J, Yeo W, Suen J, O WM, Sze WK, Ng A, Kwong A, Suen D, Fielding R. The evolution of psychological distress trajectories in women diagnosed with advanced breast cancer: a longitudinal study. Psycho-oncology doi: 10.1002/pon.3361
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