My brother in law had a form of Parkinson's Disease. He spent the last 2 years writing stories about his personal situations dealing with the side effects of his particular form of Parkinsons. All he wanted to do was expose these stories to others who might be experiencing similar situations... Can I do this? He died on April 26, 2019.
Yes, please do it. The experience with Parkinson's Disease of your brother in law, it is very Important for researchers like us that are interested to access more information of this neurological disease, that could help to understand it.
Sorry to hear that your brother in law died ..
But he left a personal and medical treasure I think. It is so important for patients as well as care givers and doctors too to know the feeling of a patient with the same illness as themselves suffer and how he faced it and felt about it and overcame his symptoms ..
I would suggest that it to be mixed with scientific meanings and medical signs of the symptoms he had mentioned in his notes ..
Thank you Jorge and Tamer. I tried to upload the file (with the stories), but I rec'd a system error- it said only the author can upload a document. (I think my brother in law had a ResearchGate account, but I cannot access it). Also- I am not qualified to add any info to his documents, Tamer. He wrote his experiences straight from his heart.
Helena, Could you please send it to my email: [email protected]?
I will appreciate the report.
If you have the time please read my paper on Update on Parkinson’s disease..
Thank you!
Yes Helena and that is why it is treasure a personal experience from a patient's heart to the audiance but to be of better value for young doctors and young researchers I think adding to the stories a paragraph or more that redefine the symptoms and stories to their scientific reason or medical facts would be of value too.
If you are interested in something like this please contact one of us..
Thanks, I confirm the reception of the file. Soon, you will have more news
I'm a writer affected with multiple sclerosis and that's why I would like to read your brother's text. Condolences and RIP. Thanks in advance if you can send it to me: [email protected]
Well helena ..thank u for the sharing I will read it and inform u our plan .. but I think we can have a try with the (MDS) movement disorder society.
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