Looking for research on short and longterm effects of trigeminal neuralgia on patients. All aspects of condition, treatment, physical course and outcome, emotional and psychological course and outcomes are of interest.
I would suggest you contact any physicians listed here from U of Florida at Gainesville.
The 3 rd annual meeting is by invitation only, but the researchers listed will likely have direct or indirect knowledge of who is doing what type of research along the entire spectrum of this challenging disorder ! Best wishes ! I also put in a link to facingfacialpain.org Hope this is of help to you !
Third Biennial Facial Pain Research Foundation
International Consortium Meeting
On March 9-10, 2017 the Third Scientific Meeting of the Facial Pain Research Foundation will be held at the University of Florida Orthopedics and Sports Medicine Institute in Gainesville Florida. Scientists from their world-wide laboratories will report their research progress to the Trustees of the Foundation. This Meeting has enormous importance to approximately 400,000 trigeminal pain sufferers in the United States and Millions across the globe. While the focus is on finding cures for trigeminal neuralgia and related neuropathic pain, this cutting edge research may extend to those who suffer from all nerve damage including multiple sclerosis, phantom nerve pain, and nerves damaged by radiation or chemotherapy.
It is important that this by “invitation only” Scientific Meeting be held in a quiet private location away from the main-stream media. The international consortium of scientists work in a synergistic fashion to assist each other in moving their research projects to fruition. It is the only “team” of scientists in the World working together to find the cures for trigeminal neuralgia and related neuropathic pain. They will be sharing with one another the progress they are making in a supportive and confidential environment and brainstorm the directions the research is going and how they and the Foundation Trustees can maximize their opportunities for success. Each research project’s findings and progress must be kept confidential until progress announcements are made regarding clinical trials and the intellectual property rights must be protected.
Dr. Douglas Anderson, the Foundation’s Research Director will Chair the Meeting. Some of the five research project presentations at the Meeting will include: Genes That Predispose to TN, Cell Replacement Therapy as a Treatment for Injury-induced Neuropathic Pain, Dysregulated Lipid Metabolism as a Disease Modifier in Peripheral Neuropathies, Mapping Towards a Cure-Identification of Neurophysiologic Signatures of Trigeminal Neuralgia Pain and Behavioral Data, and Revisiting the Cisternal Trigeminal Nerve Root for Targeting with Contemporary Tools.
The Scientists and Foundation Trustees will be focused throughout the Meeting on how they can move forward more effectively to enhance progress toward cures and what additional resources will be needed to ensure success.
The Meeting Participants will include: Dr. Marshall Devor, Israel, Dr. Ze’ev Seltzer, Canada, Dr. Joanna Zakrzewska, London, UK, Dr. Allan Basbaum, San Francisco, Dr. Kim Burchiel, Portland, Oregon, Dr. Scott Diehl, New Jersey, Dr. Lucia Notterpek, Gainesville FL, Dr. Catherine Bushnell, NIH, Dr. Mingzhou Ding, Gainesville FL, Dr. John Neubert, Gainesville FL,
Dr. Todd Golde, Gainesville, FL, Dr. Wolfgang Liedtke, Durham, NC, Dr. Robert Caudle, Gainesville, FL, Dr. Marcelo Febo, Gainesville, FL, Dr. Michael Pasternak, Gainesville,FL, Mike and Harriet Hirsch, Naples, FL, Dr. Douglas Anderson, Gainesville, FL, Roger Levy, Scottsdale, AZ, Elizabeth Cilker-Smith, Los Gatos, CA, Pat and Amy Tomasulo, Chicago, IL, Jean Raymond, Vermont, Jay Winer, Asheville, NC, Suzanne Grenell, Scottsdale, AZ., Tom and Susie Wasdin, Cocoa, FL, and Frank Skoviera, Tampa, FL.
Introducing Todd E. Golde, M.D., Ph.D.
Todd E. Golde, M.D., Ph.D., is currently the Director of the Center for Translational Research in Neurodegenerative Disease at University of Florida (Department of Neuroscience) where he directs a robust program of scientific discovery aimed at translating basic discoveries in neurodegenerative disease into diagnostics and treatments for patients. Dr. Golde has joined the Facial Pain Research Foundation research team as a Co-Investigator on the “In Search of a Cure: Finding the Brain Signature Centers that Cause Trigeminal Neuralgia”. The project is directed by Dr. John Neubert at the University of Florida McKnight Brain Institute. Dr’s Mingzhou Ding, Marcelo Febo, Robert Caudle are also Co-Investigators. Dr. Andrew Ahn, Chief Scientific Officer Pain/Headache, Eli Lilly & Co. is a Consultant.
http://www.facingfacialpain.org/
Thank you. Unfortunately, I am the one in pain now and searching for answers on a personal level that are concise. Do you know of written study comparing the different types of medication and/or surgery for TN? Studies a layperson can understand?
I do not believe the RG founders meant for this site to be source for personal information. In fact, I bet they would explicitly state this in user agreement.
Best wishes
Thank you - I agree with your statement about RG. Knowing, though, what is being researched leads me to information I can take to my doctor for discussion regarding my person case.
At the same time, I am also researching chronic pain conditions and their relation to what's considered a mind/body split, and how a doctor's relationship with their patient might contribute to, or help to heal, a mind/body split. Are you familiar with any research and articles related to these subjects?
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