I am particularly interested in the possible applications of such an approach in inpatient settings. Heather Castillo (here on Researchgate) has recently deployed this method within a service for people living with personality disorders. I am working with sufferers who have severe eating disorders as well as 'co-morbid' personality disorder diagnoses - but whose voice is often absent from research in these interlinked fields, except as alienated 'objects of study'? Any ideas, hints, tips, references, objections would be most welcome!
Hi John, I don't know of any participatory studies carried out on wards, however, my first though was Professor Phil Barker who developed the Tidal Model. He now lives in Scotland and I don't have a current contact address but he's very approachable if you can speak to him. His work was wider than Eating Disorder and PD but he was a past-master at engaging service users and really involving them in their recovery. His work inspired me in that he seemed to have a knack of connecting on a very basic and real level with those he worked with. It would seem to me that any research work, or participatory enquiry, on wards would need to establish those fundamentals to be truly successful. All best, Heather
Good answers here. John - attached here are two articles from a PAR project that I headed up in the UK some years ago. It involved a Trust-based osteoporosis service and also included orthopaedic wards. It may assist
Article A preventative health education programme for osteoporosis
Article A multidisciplinary osteoporosis service-based action research study
Hm this is a toughy...you mean you want to document their reported thoughts/feelings etc about life treatment and beyond? Except for the tip of the iceberg who appear on reality tv for a show like INTERVENTION, this population has often learned not to trust and getting their stories takes some time and doing BUT it can be done...the Guelph Prison First Nation programme was good when I was there...but what's to stop you contacting the folks who were willing to go on TV with their desperate woes...although they may skew some variables...hi extravert kind of thing...
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