I am researching parents who have autistic children and what are the challenges they are facing in rural communities in Nigeria.
Hi,
You can look into the following material, available on Google:
ISAA from India for assessing the severity of Autism
Lenart, A., Pasternak, J. Resources, Problems and Challenges of Autism Spectrum Disorder Diagnosis and Support System in Poland. J Autism Dev Disord 53, 1629–1641 (2023). https://doi.org/10.1007/s10803-021-05142-1
strengths and difficulties questionnaire
https://www.indianpediatrics.net/may2014/356.pdf
Hi,
I think you may want to ask them about the availability of community social support and what are their expectations for their children with autism. Most parents have varying degrees of expectations, some are realistic, other are not. You could explore these fronts in your research. I hope this helps?
I'd imagine many questions would have to do with access to improvement services like speech-language therapy and social skills trainings. So questions like "do you have reliable internet access," "can you travel far distances regularly to take your kid to programs," and "are you able to afford these services?"
Another set of challenges would probably be teaching behaviorly-appropriate coping mechanisms for sensory overload to these kids to better help them endure and engage in family and community activities.
Many facts and experienced parents in this article!
Can In-Utero Exposure to Acetaminophen Cause Autism and ADHD?
The question is a matter of fierce debate among scientists. Now it’s making its way into the courtroom...
More than 100 families of children with autism and ADHD are suing companies that market acetaminophen, the pain reliever in Tylenol and an array of other medications. At the heart of the lawsuits is a debate over how to interpret acetaminophen studies. The answer has profound implications for public health...
https://undark.org/2023/07/10/can-in-utero-exposure-to-acetaminophen-cause-autism-and-adhd/
There are several challenges that can be summarized as follows:
- Psychological pressures - stigma, affiliation - fear of the future - lack of care and sponsorship by the state for this group, but I think that rural families do not face real challenges with autism due to the lack of knowledge of the disease - and the lack of social pressures represented in isolation, exclusion and marginalization, if you like More information, do not hesitate to contact me as a researcher. I am completing a PhD thesis on the psychological and social suffering of mothers of autistic children. Thank you, my respected researcher colleague.
- Badges
- Science method
- Similar topics
- Methodology