1. How to assure Protection, Validation and Interpretation of the data without killing the possibilities of sharing.
Protection: sharing data means that we authorise other users to see the data. The main question is not the data access control in the first line but the second line: how can we assure that the actors who get the data don't share it with actors I don't want them to.
Validation: how can a caregiver validate a data for the use of it in a medical process?
Interpretation: how do we avoid misunderstanding of data between actors (use of languages, use of coding)
It is possible to solve these three problems with a lot of effort. The challenge is to keep the balance between all measures to solve these three challenges and the benefit of sharing the data.
2. Maybe the bigger: sharing the data means redistributing activities and responsibilities among the caregivers. This means that some actors have to be spoiled, and they will resist the change.
Interoperability just means people can access an ocean of data. This doesn't mean they can easily find data they need. Hospitals need task workflows and information routing to get data they can efficiently use.
Looking again tot he question: it was about communication between health and social care providers.
The difference between these two worlds is that the healthcare providers have stronger regulations for protection of information.
So looking at my first answer:
Protection: doesn't change a lot. only that social care providers have to apply stronger rules for the use of medical data.
Validation: the questions is the same. But maybe that health care givers have less confidence in social care givers.
Interpretation: the health care giver have strong regulated code systems and Jargon. i am not sure if social care givers have codes and how they use codes. And I am pretty sure they have strong local jargon.
Redistributing tasks is only more difficult when some tasks go from health to social actors.
I would suggest you to address the issue from two angles:
A) The angle of interoperability, since it is the heart of the matter
B) The angle of the sharing of personal data, which is more an ethical than of interoperability challenge
The areas of your question are then those of interoperability and ethics.
Regarding interoperability, strictly speaking, it comes in three types: technical interoperability (problems related to the connection between the systems exchanging information), semantic interoperability (which guarantees the same understanding of the meaning of the information being shared between the players), syntactic interoperability (which defines the syntax used to share information).
As for ethics, I suggest you to take into account the four ethical principles of bioethics which are in the tradition: 1) Autonomy, 2) Nonmaleficence, 3) Beneficence, 4) Justice
You will then be able to see within the interoperability types, what ethical challenges should happen. The themes you will work on will be mainly data privacy and patient consent.
In general and similar to any other distribution of Personal Information (PI) issue, if the patient (owner of PI) is aware and authorizes the distribution of his/her PI, there should be no problem. PI is a property of its owner and the owner must be able to decide whether to share or protect it.
The problem comes up when the PI gets distributed with out authorization of its owner.
No need to mention that if PI is shared without authorization of the owner, it is a HIPAA violation and there are civil and criminal penalties for this type of violation.