This is my considered opinion: In the USA, (HIPAA) Acronym that stands for the Health Insurance Portability and AccountabilityAct, a US law designed to provide privacy standards to protect patients' medical records and other health information provided to health plans, doctors, hospitals and other health care providers.Apr 14, 2003
Medical Definition of HIPAA - MedicineNet
www.medicinenet.com/script/main/art.asp?articlekey=31785 laws prevent violating privacy of patients.
It is unethical to collect and disseminate private information about patients. Start by going to your hospital or university Ethics Board. Read widely about registries. Talk to legal professionals. Mary Latela