What are the total costs incurred to the system and to the patient as out of pocket expenses, where insurance does not fund dental care, especially in case of cleft lip and palate?
A small report on some aspects of pre-surgical cost was put out by the Dutchcleft group (see below) which might be of interest to you. Obviously the cost to different parties will vary greatly depending on what type of funding situation exists in the location the treatment is being conducted, so the generalizability of this is limited.
1. Konst EM, Prahl C, Weersink-Braks H, et al. Cost-effectiveness of infant orthopedic treatment regarding speech in patients with complete unilateral cleft lip and palate: a randomized three-center trial in the Netherlands (Dutchcleft). Cleft Palate Craniofac J. 2004;41(1):71–77. doi:10.1597/02-069.