Hi Tsitsi,

I have attached an article by my colleague Devi Mucina called "Albinism: An Erasable Childhood". There may be some content in there useful to your research question.

Suzanne

Hi Tsitsi,

it was great to be challenged on the question of albinism. I have no recommendations for you as I know nothing - to my shame. It's not my field, but categories of physical appearance that are seized upon as excuses for discrimination and bullying as a way of scapegoating people are protected in the European Union by anti-discrimination law. So I'm thinking one should include albinism. Do you consider it a type of disability? I don't think it should be because the albino person is not less able than someone of another shade of colour. So would it be protected in law by rules against racism? Would 'whiteness' be the category to be protected - with all its confusing implications? There are white albinos, so how would albinos want to label their difference that causes discrimination - if discrimination is the problem. I've just found/read the report "Action on Albinism in Africa, Consultative Forum Report, 17-19 June 2016, Dar es Salam, UR Tanzania , which has a wide array of suggested measures. I hope the African experience and the policies adopted will help the EU recognise and include albinism as a grounds for protection from discrimination in its Treaty and practices for  implementation.

 Thank you for drawing my attention to this important issue.

Sincerely, Monica Threlfall

Thanks Suzzane for the article and Monica for the insights. Interesting stuff.

Hi Tsitsi

I think you are working on a very pertinent research theme. Today in some parts of Africa persons with albinism are not only discriminated against but live in daily fear for their very lives. You may want to look at ENHANCING EQUALITY AND COUNTERING DISCRIMINATION AGAINST PERSONS WITH ALBINISM IN UGANDA

https://actionalbinism.org/pt/document/u0o2s4u2bs