We are currently looking at the QOL of children with Lymphoedema and are very aware that this condition and its necessary treatment may have a profound effect on the whole family but especially the siblings. There is very little written about children with lymphoedema so want to look at the broader context of chronic illness
Check out the recent literature review: Health-related quality of life measurement in siblings of children with physicalchronic illness: A systematic review.Limbers, Christine A.; Skipper, Sarah.Families, Systems, & Health, Vol 32(4), Dec 2014, 408-415http://dx.doi.org/10.1037/fsh0000077 Abstract Purchase PDFAdd To My ListAbstract The diagnosis of a physical chronic illness during childhood can cause stressors and changes within the family system that place family members at-risk for impaired functioning. The objective of the present study was to perform a systematic review on the health-related quality of life (HRQOL) of siblings of children with physical chronic health conditions. Three independent reviewers performed the search in the databases PsycINFO and PubMed, which resulted in 9 studies meeting full inclusion criteria. Overall, sibling HRQOL was better than children with a physical chronic illness. Parents of siblings of children with physical chronic illness tended to rate sibling HRQOL better than siblings self-reports. Greater disease severity emerged as a potential risk factor for impaired sibling HRQOL. These data underscore the importance of assessing sibling HRQOL in families with a child who has been diagnosed with a physical chronic illness. Future research is needed in this area with larger sibling samples and across a greater variety of childhood chronic illnesses. (PsycINFO Database Record (c) 2016 APA, all rights reserved)
You could look at the book on Down's syndrome ed L Marder for answers
Down Syndrome: Current Perspectives. Edited by Newton RW, Marder L, Puri S. In the series: Clinics in Developmental Medicine. . MacKeith Press, London, UK, April 2015. ISBN 978 1 909962 47 7. . Acta Paediatr, 105: 855. doi:10.1111/apa.13429
You might also have a look at the classic book
Shadows in the Sun: The Experiences of Sibling Bereavement in Childhood (Series in Death, Dying, and Bereavement) by Betty Davies.
When I was working on the effects of death on siblings I found her discussion very interesting, as she addressed siblings of children who may have the same disease that led to the death of the sibling.
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