I am looking for recommendations of Quality of Life and Activities of Daily Living measures that will be used in a longitudinal study.
In other studies I have been involved in, the ADL measures are at ceiling quite often and do not show adequate sensitivity to change for this and other reasons. I have encountered similar issues with QOL measures I have used.
I would appreciate any recommendations you could provide. I'm currently searching the literature, but feel that asking the experts may be more efficient!
Thanks
Do you mean, the specific scales or questionnaires which are highly sensitive to assess QOL and ADL?
Dear Matthew Shaun Lewis, What types change do you mean? Your questions sensitive to change is not appropriate. You can use any standard scale to measure QOL and ADL. As it is longitudinal study you can measure the change in the future.
Sai Krishna Gudi yes I am looking for recommendations of scales and questionnaires to measure ADLs and QOL, but that have been shown to be sensitive to change (responsive). A lot of the measures are fine to assess (i)ADLs and QOL, but in order to observe a change in many of the measures there needs to be quite a large change. Similarly some look at quite wide timepoints for their assessments (ie in the past month/in the past 6 months can you do "x"?). I am looking for measures that have improved metric properties to detect more subtle changes in repeated measures designs.
Hom Nath Chalise I am looking at change in response to a health intervention, but this is a recurring question in a lot of populations that I have worked with. Many measures are assessing a level of inability that is too severe for our populations, and their performance will be at a ceiling on the measure even though they indicate that they are having difficulties in some of their daily activities. The problem is that these impairments are too subtle to be detected on the measures, but are highly relevant to the person, and recovery to normal on these functions will be a key treatment goal, and marker of the success of the intervention.
I am not as familiar with these measures as I was back in the day when I produced/edited Research Instruments in Social Gerontology, but my suspicion is that you may need to develop an instrument that explicitly tracks some of the behaviors that you believe the intervention impacts. In my opinion most of the existing measures are focused on population health metrics, while it appears in your comments that you are more interested in within-person change models.
the discussion looks too intriguing to answer through a "trivial" EUROQoL suggestion. Therefore an attempt [for a maybe marginal hint]
best regards, Mauro Colombo
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