Hi,

May be some of these articles be of help to you:

Liao X, Lei X, Li Y. Stigma among parents of children with autism: A literature review. Asian J Psychiatr. 2019 Oct;45:88-94. doi: 10.1016/j.ajp.2019.09.007

Ten Hoopen LW, de Nijs PFA, Duvekot J, Greaves-Lord K, Hillegers MHJ, Brouwer WBF, Hakkaart-van Roijen L. Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life. J Autism Dev Disord. 2020 Jan;50(1):263-277. doi: 10.1007/s10803-019-04249-w

Scherer N, Verhey I, Kuper H. Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis. PLoS One. 2019 Jul 30;14(7):e0219888. doi: 10.1371/journal.pone.0219888

Schertz HH, Lester JN, Erden E, Safran S, Githens P. Challenges and contributors to self-efficacy for caregivers of toddlers with autism. Autism. 2020 Jul;24(5):1260-1272. doi: 10.1177/1362361319899761

Hand BN, Coury DL, Darragh AR, White S, Moffatt-Bruce S, Harris L, Longo A, Gilmore D, Garvin JH. Patient and caregiver experiences at a specialized primary care center for autistic adults. J Comp Eff Res. 2020 Nov;9(16):1131-1140. doi: 10.2217/cer-2020-0155

Hartley M, Dorstyn D, Due C. Mindfulness for Children and Adults with Autism Spectrum Disorder and Their Caregivers: A Meta-analysis. J Autism Dev Disord. 2019 Oct;49(10):4306-4319. doi: 10.1007/s10803-019-04145-3

Marsack CN, Hopp FP. Informal Support, Health, and Burden Among Parents of Adult Children With Autism. Gerontologist. 2019 Nov 16;59(6):1112-1121. doi: 10.1093/geront/gny082

ESSENTIAL !!, to continue taking good care of them they need A BREATH ... This is so yes or yes and it is framed in everything written and Models about "CARING FOR THE CAREGIVER", to avoid them over stress and, above all, BURNOUT (and this it is independent of whether they are "Formal or Informal" Caregivers) .Regarding the studies in this regard, you can find many with the keywords "Counseling on Caregivers"; "Caring for the Caregiver" and the like; You can also read our contributions on this here in "RG". Thanks.

This will be my mega thesis and I am working on this. Will be published at the earliest.

I am attaching my very recent article about autism and its challenges as they move into adolescence and adulthood.

Rich