Those who identify as Deaf and are members of the Deaf community use sign language to communicate. This cohort is at risk of being marginalized by research activities. These activities create cultural, linguistic and ethical challenges. Within the Deaf community, being Deaf is a cultural identity rather than a disability, completely contradicting the medical model that sees the Deaf as 'broken' and needs 'to be fixed'.
Of course, there are three groups of advocates: * one group advocates for the implantation of CIs so that the child learns to 'speak and hear'. Unfortunately, this is not a one-size-fits-all solution. * The second group advocates using a hearing aid and teaching the child to lip-read and speak because 'it is a hearing world and they need to fit in'. Yes, this does not work well across the board. * the third group of advocates are those who provide children with the tools in sign language to develop their literacy. The first two groups align with the medical model, and the last aligns with the social model.
When researching the Deaf community, does ethics create a barrier, and if so, what are those barriers? If not a barrier or challenge, which way could ethics open the door to researching this minority? For example, anonymity within a focus group is impossible as they would see the others. However, within an interview, anonymity might be possible. I say might because within a small cohort, like the Deaf community, some are happy to participate however, they might be recognized by the comments made during their interview. Another issue of anonymity that comes up with this cohort is the use of an interpreter who is provided with the training not to disclose what their clients have said; however, the researcher cannot guarantee non-disclosure. This is why it is impossible to say that anonymity is guaranteed; it cannot be guaranteed.
I would appreciate your engaging with this topic to ensure my research is ethically sound and to provide a robust discussion. As with all research, we use the research of others before us, and we are stepping stones for those who come behind us.
Thank you,
Michelle