Understanding the complexities of various syndromes and the associated behavioral manifestations , what are alternative therapies to manage such patients?
Challenges and difficulties vary depending on the type of syndrome and the nature of the patient. But mainly it requires extensive experience in the field of syndrome to find a correct way of dealing with the patient
This definitely depends on the type of syndrome, and this needs a joint team that includes a doctor, health worker, psychiatrist, family, and surrounding community. Who should be familiar with how to deal with this patient,
Aparna Sathya Murthy I agree with you dear. There is a lack of knowledge about several features about syndromes. Although down syndrome patients are pleasant and social while ASD patients are definitely difficult to manage in dental settings and require a lot of patience.
I need to know what challenges you face or have faced? and how do you manage them without sedation?
Dear Ekhlas A. Hussein I agree with you that such patients need an interdisciplinary approach in management. But eventually, the treatment has to be performed by a dentist only. So my query about what could be challenges or hindrances during the therapy.
many thanks for your contribution and useful feedback.
I completely agree with the above responses given by the experts.As is the case with any medical caretaking process, Empathy is one of the primary features one needs to posses while dealing with syndrome patients too. It would require them (caretakers) to invest some time to learn the challenges the patients face and the kind of assistance they require. Caretaking comes before administering drugs or providing treatments to them.
With the dentist, for example when dealing with a patient with HIV / AIDS, the doctor and staff should take care when dealing with the patient to avoid the transmission of infection, it is better to wear a double pair of gloves, and be careful not to touch the syringes after the injection and sterilize all tools after use with extreme caution to prevent the transmission of infection to other patients
Navnit Kumar Ramamoorthy -Sir, welcome to this discussion and appreciate your interest and response.
I agree with you that the most important part of managing such patients is to be empathetic -towards the patients and the parents as well.
For any parent, bringing up a child with any syndrome or disability generates stressful conditions which in most cases are associated with adaptation to a child’s daily routine practices, coupled with limited opportunities for health care means. Subsequently, a scheduled dental visit may represent a major ordeal for parents, the dentists, and even the patients.
Ideally, Therapy should begin with parental counseling.
The biggest challenge in dealing with these patients is how the treating physician can raise the patient's morale and help him psychologically to overcome the barrier of despair and sow hope for recovery ..
A meta synthesis of published qualitative studies was conducted, producing a multi-perspective description of barriers to the diagnosis and management of CFS/ME, and the ways that some health professionals have been able to overcome them. Analysis provided second-order interpretation of the original findings and developed third-order constructs to provide recommendations for the medical curriculum.
Lamia Mustafa Al-Naama Abeer Dakhil Hatem Zainab Nizar Jawad
Bushra Dawood Saba Alsangri Aparna Sathya Murthy My thanks to all for all the support and contributions to this discussion. Your responses are worthwhile and quite helpful in my understanding of such cases in my clinic.
I feel that the most important aspect for any patient is TRUST!, if you build trust than your patient will develop trust in you . However, if you and break that trust with your patient, than your patient will lose respect and faith in you and your word.
Has anyone explored the use of L-carnitine supplement in the treatment of CFS/ME? Refer to article: Is Autism Related to CFS and Fibromyalgia? The nutrient L-carnitine appears effective in treating all three. at https://www.psychologytoday.com/us/blog/complementary-medicine/201106/is-autism-related-cfs-and-fibromyalgia
I like dealing with special syndrome patients because many dentists in the community refuse to deal with them , I have treated many Downs syndrome patients which are very obedient and cooperative, unlike the autistic children, and cerebral palsy ones that are very difficult to handle and mange.
Good question, patients with syndromes are in the special health care needs category, they are at greater risk of having health problems as compared to healthy individuals. Consequently, one of the challenges they may face is the lack of health insurance to get the treatments they may need, in addition, younger individuals may have behavior issues which may restrict provision of care. I believe it is important to provide these patients with proper health insurance throughout their lifetime, to meet their treatment needs.